Posts - PSP Association | HealthUnlocked

PSP Association

9,405 members • 11,429 posts

All posts for July 2016

I know nothing!

I have been fighting PSP for a long time now. Refusing to bow, when things have got hard, until matters have forced me. As some of you know, last weekend I was...

I have been fighting PSP for a long time now. Refusing to bow, when things have ...

•8 years ago

Having PSP - My viewpoint

I just thought I would say something about my experience of having PSP. I now have difficulty typing and finding the words I want. So my lovely husband Kevin...

I just thought I would say something about my experience of having PSP. I now ...

•8 years ago

Hampton court flower show

My lovely son and myself yesterday at Hampton flower show, just the two of us we had such a lovely day, makes life worth carrying on. 💕💕💕💕💕 Yvonne...

My lovely son and myself yesterday at Hampton flower show, just the two of us we...

Yvonneandgeorge

•8 years ago

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Heaven has another angel

I lost my precious bride of 35 years to PSP this morning at 5:14am Eastern Standard Time. She was not in any pain and went very peaceful. My two children were...

I lost my precious bride of 35 years to PSP this morning at 5:14am Eastern Stand...

•8 years ago

CHC Funding

So......they've turned down the appeal for my Mums funding and as I sit there with her today while she struggles to talk to me, cries because she can't see my...

So......they've turned down the appeal for my Mums funding and as I sit there wi...

•8 years ago

Can't take much more!

Hi everyone, Today I can't stop crying, it's been a horrible few days and I'm worn out physically as well as emotionally. Keith is getting harder to look after...

Hi everyone, Today I can't stop crying, it's been a horrible few days and I'm wo...

•8 years ago

Moved on

Hi all the time has come for my residents transition to a nursing home. A bed had become available at a nursing home which the family wanted their resident to...

Hi all the time has come for my residents transition to a nursing home. A bed ha...

•8 years ago

CHC - !!!!!!!!

Well it came through the post this morning - they rejected our appeal on the grounds that V's needs were not medical needs but social care needs...

Well it came through the post this morning - they rejected our appeal on th...

•8 years ago

Mucus

Hello. Wondering if anyone experiencing build up of mucus in chest? Dad very weak and unable to cough it up. We have had medication to loosen the mucus but...

Hello. Wondering if anyone experiencing build up of mucus in chest? Dad very wea...

•8 years ago

Home Lifts - advice needed!

Hi - I hope the collective hive mind might be able to help me? My father was diagnosed with PSP two years ago, and has probably suffered from it for the last...

Hi - I hope the collective hive mind might be able to help me? My father was di...

•8 years ago

CHC the saga continues

When my daughter and I attended the appeal panel we were told that we would have a decision between 3 and 6 weeks . Well ,we are now into the 7th...

When my daughter and I attended the appeal panel we were told that we would ...

•8 years ago

Selfish as a symtom?

Hi All! Just a quick question. Does your love one with this awful disease become selfish and demanding? I finally, after many suggestions, made the decision to...

Hi All! Just a quick question. Does your love one with this awful disease become...

•8 years ago

Please God bring him home to you.

Hello every one..... I have not written in a very long time. I have moved in with my parents to help take of my father who is at the very, very last stages of...

Hello every one..... I have not written in a very long time. I have moved in wit...

•8 years ago

New here, trying to learn...

Hi, my dad was diagnosed with PSP, last week, they think he "may" have had since 2012 or so. He is going in for a 2nd opinion at the Mayo Clinic in Rochester...

Hi, my dad was diagnosed with PSP, last week, they think he "may" have had since...

•8 years ago

Worried about coughing

Lately, when my husband retires for the night he starts coughing. Sometimes he will cough in the middle of the night. It sounds like a lot of congestion in...

Lately, when my husband retires for the night he starts coughing. Sometimes he ...

•8 years ago

Ketchup Woman is near the end

I've always dreaded writing this particular post. I've read so many of my dear friends post on this site where they shared the news of the passing of their...

I've always dreaded writing this particular post. I've read so many of my dear ...

•8 years ago

Information needed please!!!

Hi, after a weekend of choking, the speech therapist has just told me to purée all S's food. I know this conversation has been talked about before, but like...

Hi, after a weekend of choking, the speech therapist has just told me to purée a...

•8 years ago

Medication for PSP

My dad has being prescribed Domperizone and Simemet medication to help relieve stiffness. Apparently these drugs are for Parkinson's. Our Dr thinks it might...

My dad has being prescribed Domperizone and Simemet medication to help relieve s...

•8 years ago

thinking back

Just lately I have I have been thinking a lot about what could possibly have triggered my wife`s PSP, if anything, and a thought came to mind that when my...

Just lately I have I have been thinking a lot about what could possibly have tri...

•8 years ago

Next Birthday

Oh well cake number 2 finished! At least I stop thinking about the PSP while I'm cake making! Unfortunately can't do number 3 cake as we will be on holiday...

Oh well cake number 2 finished! At least I stop thinking about the PSP while I'...

•8 years ago

Umbilical tube uses????

Hi there again my fellow PSP "sufferers and Carers"!!!! I had an interesting scenario occur in my life this morning - My daughter - in-law Jo, is presently...

Hi there again my fellow PSP "sufferers and Carers"!!!! I had an interesting sc...

•8 years ago

Gratefulness for the love and support this group has for each other.

I want to tell each and everyone of you on this support group what a blessing you have been to me during a very difficult time in my husbands and my life. My...

I want to tell each and everyone of you on this support group what a blessing yo...

•8 years ago

July

July a busy month, 3 granddaughters birthdays, first one of the month yesterday, bless her, she wanted a family 'party' the cake is my creation, now working on...

July a busy month, 3 granddaughters birthdays, first one of the month yesterday,...

•8 years ago

Holiday insurance for CBD

Hi my dad is hoping to go on holidays he's still indepedant , stumbles a bit stutters and get a bit confused and has memory problems he will be going with a...

Hi my dad is hoping to go on holidays he's still indepedant , stumbles a bit stu...

•8 years ago

Summer such as it is

Well summer marches on , the longest day and midsummer's day are behind us and yet it seems hardly to have started . Our Devon lanes , which are narrow...

Well summer marches on , the longest day and midsummer's day are behind us a...

•8 years ago

Help me get mum out if bed

Thanks to everyone for all the great advice, I am so happy to say mum has began eating a little today and her angry moods have mostly settled, however she is...

Thanks to everyone for all the great advice, I am so happy to say mum has began ...

•8 years ago

Super Pubic Catheter

Does anyone know anything about the above? We are experiencing problems now with convenes and our carer says that SPCs are, in his opinion, the best way...

Does anyone know anything about the above? We are experiencing problems now with...

•8 years ago

" No room at the Inn " !

Hi there all, so sorry I have not been in touch lately but have been very busy as you can imagine running a residential care home for 29 lovely elderly...

Hi there all, so sorry I have not been in touch lately but have been very busy ...

•8 years ago

Cannabinoids remove plaque forming proteins from brain cells.

This was in the news recently. http://www.salk.edu/news-release/cannabinoids-remove-plaque-forming-alzheimers-proteins-from-brain-cells/ Here is the science...

This was in the news recently. http://www.salk.edu/news-release/cannabinoids-re...

•8 years ago

Choices?

So here is were we are at now. Following a bout of Pneumonia after he aspirated. Dad should have had his op to insert a PEG on Wednesday, after initial...

So here is were we are at now. Following a bout of Pneumonia after he aspirated....

•8 years ago

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