Mucus: Hello. Wondering if anyone... - PSP Association

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Mucus

Fiona13 profile image
7 Replies

Hello. Wondering if anyone experiencing build up of mucus in chest? Dad very weak and unable to cough it up. We have had medication to loosen the mucus but doesn't seem to be doing much. Someone mentioned physio might help. Any tips?

Thanks

Fiona

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Fiona13 profile image
Fiona13
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7 Replies
abirke profile image
abirke

I looked up treatment for cystic fibrosis...best treatment there is ibuprofin to reduce or prevent inflammation....COPD treatment calls for exercise and 02. I also found a Japanese herb mixture that seemed to help two patients called, Quen fang tang.....It helped these particular patients with their constant bouts of PSP linked pnuemonia...speech therapy might be good in that it helps them use the little breath they have to cough; " "Caw" is one of the words, as loud as he can if you say it you can feel the same muscles you use for coughing....We do that one but for now the suction machine seems to be preventing high accumulation in the lung . uhm I think Physical therapist is good anything physical....sitting up though B seems to have about the same problem up or down..

I wasn't much help but I tried....I am sorry

AVB

Heady profile image
Heady

Hi, I had the neuro physio come around, she met with S's personal trainer. They have worked out an exercise to help with the coughing. So twice a week, his lungs get a work out as well as his body. I'm sure this has helped enormously over the last few days, after having a weekend of every thing going down the wrong way. No sign of any infection (yet!!!)

Lots of love

Heady

Julieandrog profile image
Julieandrog

hi

hyocine patches work a treat get your gp to prescribe even better tell him to prescribe!!!!!

Amilazy profile image
Amilazy in reply to Julieandrog

Be careful with hyocene patches they work to reduce saliva but because they cross the blood/brain barrier can cause side effects, suggest try one patch and monitor the sufferer's reaction and remove if uncontrolled limb motions or weird feelings. We tried patches over 2 years ago and had severe reaction 3 hrs patch took nearly 3 days to wear off. Recently the nursing home put M on them again, though there are still limb mobility there is no confusion so she is on a patch 2 days with 3 days off, saliva controlled but comes back after day 2 off. GP says reactions alter over time as brain degeneration worsens though her experience is with Alzimer's and Parkinson's mainly she had seen similar reactions to M's PSP with motor neurone decease.

Good luck. Tim

millywigg2 profile image
millywigg2

Hi ,my husband has the same problem.The SALT team asked the GP to prescribe Atropine drops which are actually eye drops,but in this scenario used under the tongue.Dosage is crucial and D has only one drop at tea time,they dry up secretions.Only trouble is D is sometimes awkward about taking them as you do get a dry mouth.They have stopped the night coughs and nasty chest though. x

This is so simple I can't believe it worked. My husband was waking up in the middle of the night and coughing for 20-30 minutes. His health aide said give him baby nasal drops when he goes to bed....one drop in each side. He now coughs once or twice when he wakes up and that's it!

Fiona13 profile image
Fiona13

Thanks guys for your replies. Dr has been again and going to refer physio. In the meantime he is already on the patches- half patch every 3 days. He lives by himself so no one around during the night for coughing which worries me. Maybe will try the nasal drops - can't do any harm I guess. Fiona xx

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