Hi there all, so sorry I have not been in touch lately but have been very busy as you can imagine running a residential care home for 29 lovely elderly rsidents wanting to give them all quality attention and trying to keep on top of the ever demanding compliance as well.
My resident who has got PSP is on the decline being told by the specialists that he may have three to twelve weeks left and his loving family realise that his needs are getting to much for us so have found a nursing home and a hospice local to them BUT they have No available beds at present. So we are trying our best to look after him as much as we can making sure we are working within the Gold Standards Framework recommended by NICE for end of life care. We have got a special repose bed being delivered that can be altered to allow the resident to be comfortable at any angle as lying down is not wise due to swallowing difficulties and breathing. If his needs become one to one if he needs to be confined to bed we have got a private community agency that we can call for when the family are not able to be with him which the family have agreed to fund as they cannot get extra funding as he is still in a " Residential Home " not nursing ?
I do really empathise for the family as they are so worried for their loved one but it seems so tragic that there are " no beds at the inn " for their parent.
All we can do is give the resident all the care and attention we can and work together with our multi agencies to make sure they are as comfortable as possible and receive compassionate and dignified care as long as they are with us.
I am writing this just in case anyone else has this experience with their loved ones to try and emphasise that residential homes like mine will give 100% and more to help people with this condition and their families which hopefully will lighten the burden of all the upset and worry this PSP disease brings to everyone involved.
Take care everyone and I will try and keep you updated
My prayers are with you all