I lost my precious bride of 35 years to PSP this morning at 5:14am Eastern Standard Time. She was not in any pain and went very peaceful. My two children were with me by her side. I had taken her to the hospital on Tuesday because of a bad UTI, but they determined she also had aspiration pneumonia in her right lung. Antibiotics were not able to eliminate the infection. So yesterday we made the tough decision to stop all food, saline, oxygen, and antibiotics. She was kept comfortable with morphine and Ativan. My heart is breaking, but I know she is on a far better place.
I hate PSP! I plan to get even more involved with CurePSP, as I want to see an end to this dreadful disease.
I want to thank everyone for their kind and beautiful words from my prior post. You guys have been an excellent support system to me and I hope some of the personal experiences that I have shared in the past have helped others.
I love you guys and I will continue to stay in touch.
Ketchupman. Aka Dan Heins from Louisville, KY