I lost my precious bride of 35 years to PSP this morning at 5:14am Eastern Standard Time. She was not in any pain and went very peaceful. My two children were with me by her side. I had taken her to the hospital on Tuesday because of a bad UTI, but they determined she also had aspiration pneumonia in her right lung. Antibiotics were not able to eliminate the infection. So yesterday we made the tough decision to stop all food, saline, oxygen, and antibiotics. She was kept comfortable with morphine and Ativan. My heart is breaking, but I know she is on a far better place.
I hate PSP! I plan to get even more involved with CurePSP, as I want to see an end to this dreadful disease.
I want to thank everyone for their kind and beautiful words from my prior post. You guys have been an excellent support system to me and I hope some of the personal experiences that I have shared in the past have helped others.
I love you guys and I will continue to stay in touch.
Ketchupman. Aka Dan Heins from Louisville, KY
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ketchupman
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Dear ketchupman I am so saddened to read your post and send you my deepest sympathy on the loss of your dear wife. She is no longer suffering with this dreadful disease and has to be in a better place now.
We all love you too and I thank you from the bottom of my heart for all your help and advice, please keep in touch...
Oh Dan, I am so sorry your darling wife has left you. It must be a comfort to have your children with you at this difficult time and I hope it is also a comfort to know that you did your very best for her and she left knowing you loved her.
It's good you have a plan to be involved with cure PSP and I hope you find other good things to do as well.
Sending you a big hug and letting you know you are in my thoughts and prayers.
Sorry Dan it came to this end but it seems to have been relatively quick compared to many things this condition/disease throws. Glad you and you children were able to be with Kim to escort her to the better place. At least the medics were able to make her pain free. My prayers and condolences are with you and your family at this time. Let your grief flow then get your life back and do things in her memory.
Oh Dan thinking of you at this sad time, at least your beautiful bride is in a better place, have loved reading your posts, please keep in touch sending you a massive hug, keep strong Yvonne xxxxx
Dan, please rest and take care of yourself a little now, and let your friends and family do some caring for you, too. There will be work to do later, and it's great you will continue the fight against psp, but please give yourself some time now. Hugs and love, ec
Goodbye Kim. Thank you for sharing your husband with us he is a wonderful man and we will try to take good care of him, as he has us.
You Kim are on your way . You and your husband have fought that good fight and you have won, you are now free.
Dan, although consumed with right now with grief, you too are free. Allow yourself the freedom to mourn and the freedom to continue your life in the way you should go.
Thank you for always being here for us, you know we are hear for you.
AVB
In the day when I cried thou answered me, and strengthened me with strength in my soul
Psalm 138:3
Peace I leaveth with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled nor let it be afraid.
John 14:27
For I am with you always , unto the end of this age!
So sorry to hear of your loss. In the short time I've been a member I've read many of your posts. Your devotion has been obvious for anyone to see. You have done a sterling job and as others say rest up for a while now and spend some time with family and friends.
Hi my thoughts are with you , you have been brilliant throughout, your job is done and now Kim is at peace . You need a good pat on the back well done x
Dear Ketchupman just sent you a post a few ago, sorry just saw what you posted so very sorry about your wife thank God she is with peace now and far far away from the dreaded PSP, such. A terrible disease, take care of your self and know we are all thinking and praying for you. Nettie
I am so sorry to hear about your precious bride of 35 years Dan! you have been amazing in taking care of her ... She will be at peace now! You all will be in my thoughts and prayers . Lots of love xxx
ketchupman, Letting go was the hardest thing to do with my husband. I held him to the end and whispered "I love you" in his ear. I am praying you have a support team to keep you busy the next phase of your life. It will help take the edge off the pain and loss of your loved one. May God be with you during this time of change. xoxo
Dear Dan, I'm so sorry at you sad news you can be conforted in that your dear wife have had a peaceful end to her life, free of pain and surrounded by the people she loved. She is free from her suffering and you must now take time to grieve supported by your family. It is good to hear that you will be involved in Curepsp but do take time away from this horrid disease too, you have been surrounded by it for too long already. Love and hugs
Kate xx
God Bless you and may the love of your life now protect and watch over you and yours. She was a true warrior...
Dear Dan , your love and care for your wife has always shone through your messages. May she rest in peace. My condolences to you and your family. Peace to you all.X
Dan, words cannot describe how sorry I am for your loss. You've done an amazing job and now it your turn to rest. May God give you the strength you need to carry on. Kim will be waiting for you and will be whole and free of PSP!
Dear Ketchupman/Dan, so sorry to read you have lost your precious bride. Thankfully she was in no pain and that she had you and her children around her. I too would like to thank you for all the valuable help and advice you gave us and the good news you will stay in touch. May you find comfort in your God and strength for the days that lie ahead. Please take care and grieve in your own way and own time. Lots of love, Nanny857 x
I had you both on my mind all weekend! Our deepest condolences to you and your children. You both fought bravely! I have admired your determination to stay involved, to try new things, to never surrender to this awful disease. Your bride knows that you never lost hope in her and all of us on this site read your post and saw your commitment.
May peace be with you and yours. Heaven has gained an angel.
I didn' t Feel good at all last year i rang a local medical helpline and explained how i felt she advice me to go to out of hours surgery it took me ages to get to the surgery as it was the other side of town do you think i could find the place, i Couldn't so i got a bit annoyed and drove back home as i Couldn't find this surgery as i never been there before once i got back home i rang the medical helpline again they started to talk rubbish so i just hanged up on them and called an Ambulance when the Paramedic came to me he tested my temperature he told me it was sky high he took me to Hospital and i got told i had pneumonia
Thanks. It's been almost 2 months and still pretty tough living without her. She was so precious, sweet, and innocent. I know no one deserves this disease, but especially my Kim.
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