Posts - PSP Association | HealthUnlocked

PSP Association

9,401 members • 11,429 posts

All posts for July 2016

DIZZY DIZZY

Charles has been dizzy since yesterday! I'm concerned since there is nothing "new" to the pills or routine. Eyes very droopy. Please answer because I don' t...

Charles has been dizzy since yesterday! I'm concerned since there is nothing "n...

•8 years ago

Magic wipes!

Hi, thanks everyone for your support, whilst S has been in hospital. Good news, he is responding to the antibiotics and all being well, should be be home...

Hi, thanks everyone for your support, whilst S has been in hospital. Good news,...

•8 years ago

Poor vision means messy eating! MY TIP: Hand held meals work for my guy!

My guy is still walking and eating independently, but I have noticed a fast decline in his vision which is making his eating truly challenging. I find him...

My guy is still walking and eating independently, but I have noticed a fast decl...

•8 years ago

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Flying Walkers and a Fall

Charles just doesn't "find" his walker. He pulls it to him from across furniture, etc. I always say "find your walker" because he also picks it up and I call...

Charles just doesn't "find" his walker. He pulls it to him from across furnitur...

•8 years ago

Holiday

Mum has psp and dad is her main carer I stay 3 nights a week to allow dad to go out. He's very low in mood and I can't get him to open up, very proud man. He...

Mum has psp and dad is her main carer I stay 3 nights a week to allow dad to go...

•8 years ago

I've found something I can't deal with!

Since my darling has been unable to do anything I have discovered there isn't much I can't do if I put my mind to it and check out the internet to see how....

Since my darling has been unable to do anything I have discovered there isn't mu...

•8 years ago

Failed again!!!

Hi, S is in hospital AGAIN!!! Urine infection which caused his Catether to block. I have been trying all weekend, with the help of the rapid Response team, to...

Hi, S is in hospital AGAIN!!! Urine infection which caused his Catether to bloc...

•8 years ago

dynactin mutation

I am looking for anyone who has or know anyone with a genetic condition called dynactin mutation.My granny,mum,aunt,uncle, and myself all have a tracheostomy...

I am looking for anyone who has or know anyone with a genetic condition called d...

•8 years ago

Just thank you

Thank you every one for your kind words with your condolances I've wrapped myself in the TLC that arrived with your posts. Chris F.

Thank you every one for your kind words with your condolances I've wrapped mysel...

•8 years ago

Last days

We are at the crosswords. Dad has always asked that every thing be done to keep him alive. Do we resuscitate Do we re incubate when he can no longer breathe...

We are at the crosswords. Dad has always asked that every thing be done to keep ...

•8 years ago

Elizabeth died

I don’t know if I’m ready to post this or if it’s too early for me so let’s see. My partner of 25years, my soul mate and my butterfly died on Friday morning...

I don’t know if I’m ready to post this or if it’s too early for me so let’s see....

•8 years ago

Hospice registration

Can you register for an hospice before its needed so my Pete can get used to it. He has been diagnosed with psp for about 3 years. I do not want him to be...

Can you register for an hospice before its needed so my Pete can get used to it....

•8 years ago

Things I like, things that help and things which don't

Someone asked what my days are like, what do I do, what helps and what not. So I thought I would put my thoughts down, knowing that these might be absolutely...

Someone asked what my days are like, what do I do, what helps and what not. So I...

•8 years ago

Wheelchair advice please

We are getting to the stage where J would be happier with a wheelchair available. My priority is for it to be collapsible and light, so I can get it into the...

We are getting to the stage where J would be happier with a wheelchair available...

•8 years ago

Meds 7 Anaesthesia temperature and Tau formation.

Last of these posts. Thank you Chrisite47 for this article. It is precisely what I have been searching for. Alzheimer’s disease and anesthesia from...

Last of these posts. Thank you Chrisite47 for this article. It is precisely wha...

•8 years ago

Eye Trouble

Charles had a really bad day yesterday. When I asked he said I can't see. He has the PSP eyes and can't see well downward or for anything except TV and he...

Charles had a really bad day yesterday. When I asked he said I can't see. He h...

•8 years ago

Meds 6 Anaesthetics and Postoperative Cognitive Dysfunction - FOG

I have been reading about anesthetics and FOG or PCD (see title of post) Over on Cure PSP there are quite a few threads on this and the subjective consensus...

I have been reading about anesthetics and FOG or PCD (see title of post) Over on...

•8 years ago

Meds 5 Medication to avoid with PSP

A medications chart for PSP from 'Parkinsons Canada' No longer posted - I found it in the Google archive. T. Moore (2013) This medication chart ducks the...

A medications chart for PSP from 'Parkinsons Canada' No longer posted - I found ...

•8 years ago

Be the first to reply

Meds 4 Anesthetic isoflurane has been shown to promote Alzheimer’s disease (AD) neuropathogenesis

I won't be posting this article unless asked. It is a very heavy clinical read (statistics experimental model etc - Way above my reading age) of tests done on...

I won't be posting this article unless asked. It is a very heavy clinical read ...

•8 years ago

Meds 3 - An up top date description of PSP with symptomatic and possible treatments

PSP Another good article giving diagnosis of PSP and CBD it also differentiates the symptoms and development of these. By T. Haine of the Diziness and Balance...

PSP Another good article giving diagnosis of PSP and CBD it also differentiates ...

•8 years ago

Meds 2 A review of PSP by top specialist.

This is an old article in the BMJ by Huw Morris et. al. He went on to become Professor at the University College London Hospital (World class neurology...

This is an old article in the BMJ by Huw Morris et. al. He went on to become Pro...

•8 years ago

Meds 01 L-Dopa

Australian and New Zealand Journal of Medicine Ivan MacG. Donaldson Volume 3, Issue 4, pages 413–416, August 1973 Summary: Two cases of...

Australian and New Zealand Journal of Medicine Ivan MacG. Donaldson Volume 3, Is...

•8 years ago

Meds and PSP

Some kind forum member - whom I cannot name because they have not given me permission - sent me some academic papers on Anaesthetics and PSP. (I really do...

Some kind forum member - whom I cannot name because they have not given me permi...

•8 years ago

I got this problem coughing after eating then sick or flem comes up after coughing ···· please help

When i eat some times once I've eaten that i end up coughing and either i be sick a bit Or i would cough then bring up Flem - my wife has said so...

When i eat some times once I've eaten that i end up coughing and either i ...

•8 years ago

Our family is complete.....may be!

Meet Jess and Tess, who came to join Millie, Mollie and Andy Pandy today. They are all rescue Guinea pigs and are gorgeous. They also answer me when I talk...

Meet Jess and Tess, who came to join Millie, Mollie and Andy Pandy today. They ...

•8 years ago

Neupro

Just wondering if anyone was ever put on Neupro Patch and if so how well did it work Hugs Kryste

Just wondering if anyone was ever put on Neupro Patch and if so how well did it ...

•8 years ago

No posting

I have not seen anyone posting for the last few days, where have you all gone? Yvonne

I have not seen anyone posting for the last few days, where have you all gone? Y...

Yvonneandgeorge

•8 years ago

Anaesthetics

Something prompted me to think about full anaesthetics and PSP. I can't remember where we got this from, but I have it in my mind that administering a full...

Something prompted me to think about full anaesthetics and PSP. I can't remembe...

•8 years ago

Sincere thanks to my extended family

Your kind and comforting words have meant so much to me over these past few days. You're just like family to me. As I prepare to head to the funeral home, I...

Your kind and comforting words have meant so much to me over these past few days...

•8 years ago

MY MOTHER..

My mother has had PSP ..I live over an hour away and take care of father I try and talk to her on phone its become impossible I'm seeing a lot of communication...

My mother has had PSP ..I live over an hour away and take care of father I try a...

•8 years ago

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