Help me get mum out if bed: Thanks to... - PSP Association

PSP Association

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Help me get mum out if bed

Sharli profile image
18 Replies

Thanks to everyone for all the great advice, I am so happy to say mum has began eating a little today and her angry moods have mostly settled, however she is very tired and has no interest in getting out of bed, talking or watching TV, all she wants to do is sleep any suggestions? She won't even get dressed

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Sharli profile image
Sharli
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18 Replies
Satt2015 profile image
Satt2015

Let your mum sleep, don't worry too much that she doesn't want to get dressed!

I believe sleep is the best medicine

Each day is different, see what tomorrow brings x

Sharli profile image
Sharli in reply to Satt2015

Thanks for advice, I just worry as she hasn't been out of house for months, I want her to enjoy life while I can still manage to get her in & out of wheelchair and now she won't even get out of bed, I have to change the sheets while she is still in it

Satt2015 profile image
Satt2015 in reply to Sharli

Bless you

I totally understand

My dad has become bed bound in the last 2 months before that he went to the hospice once a week for music therapy and once a week to a gym for people with Psp and Parkinson's

Breaks my heart looking at him now and he sleeps most of the time and hardly eats

So I really do get you!!

Big hugs

Remember tomorrow may be different X

abirke profile image
abirke in reply to Sharli

Open a window let outside come to her!

Sharli profile image
Sharli in reply to abirke

Great idea

jillannf6 profile image
jillannf6 in reply to Satt2015

i agree satt

hows ur ddd

loljillzxxxxl

Sharli profile image
Sharli in reply to jillannf6

Hi Jill, mum is doing well, we brought her a new dvd series, amazingly she got hooked, is getting up for showers & getting dressed as I refuse to put tv in her bedroom, how r u

jillannf6 profile image
jillannf6 in reply to Sharli

m ok t a am ccpingsstuil getting t2 choir . tai chi' hair d sand a newish group on friday all day bunt oi jistt wish i could walk few yards iiiwithou t falling over st;;;; wam gooing on hpls again in aug and sept so there sis stuff 2 look fwd to

lol jill

xxxx

Doglinton profile image
Doglinton in reply to jillannf6

You always inspire me, Jill.

You seem to avoid the apathy others have. Do you have to make yourself do things ?

Keep it up !

love, Jean x

Sharli profile image
Sharli in reply to jillannf6

Hey Jill, good on you, your such an inspiration to those with this horrible disease, happy holidays xx

Heady profile image
Heady

Hi, I agree with the others, let her sleep. We all know, well we think we know, that she would be better off, at least sat out in a chair, dressed, even going out for some fresh air. Your Mum has very few choices that she can make anymore, try hard to let her make this one!

Lots of love

Heady

Yvonneandgeorge profile image
Yvonneandgeorge

Yes agree with what has been said, George would stay in bed nearly all day, since careers have been coming in he get up at 8 o'clock, sometimes he goes back to bed but up after a couple of hours, they come in and put him to bed at 8 o'clock, he is much better, but never wants to go out saying he is cold even when it is warm. Let her sleep she will hopefully, want to do things soon xxxxx Yvonne

Amilazy profile image
Amilazy

I agree with all comments above, but in addition I would mention it to your local pharmacist to see if the sleep is result of some of her medication. Then if a side effect discuss with her GP to change the medicine regime.

Good luck. Tim

mthteach profile image
mthteach

Sharli, My husband did that. He would eat a meal and want to go right back to bed. I tried to get him to stay up because it was not healthy for him to stay in bed. I found getting him our of the house worked a little. Best of luck with her.

Doglinton profile image
Doglinton

I find with Chris that if I ask him if he wants to go outside he usually says no. So I just say " time to sit outside " and he does. I wouldn't make him if he really didn't want to.

love, Jean x

Sharli profile image
Sharli in reply to Doglinton

Thanks Jean, how do u manage to get Chris outside safely, I am always frightened trying to get mum through doorways & down step s couple of times I have hurt my back getting her in & out of wheelchair

Doglinton profile image
Doglinton in reply to Sharli

Chris can walk with me. I only need to tell him to hold the door. Can you get the wheelchair outside ?

I also find some days Chris only wants to sleep but not all days. He is always better when any-one official comes round !!

Sharli profile image
Sharli in reply to Doglinton

No not with mum in it, I have to get her outside first & then put her in it,

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