Taste

[LynnO]

Has anyone had trouble with how food taste? My husband says that most of the food he eats tastes like cardboard, hardly had any taste at all. Eating is one of the things he truly likes to do anymore, and now the food he loves doesn't have any taste. I was wondering if anyone else with PSP/CBD had the same problem.

Thanks, Lynn

[jzygirl]

When Brian was demanding curries and chillies all the time it turned out he had oral thrush and that affected his taste. After he was treated and the thrush cleared up everything taste wise was ok. Hope this helps. Janexx

[Hidden]

Hi Lynno

People with Parkinson's often have no sense of smell, and this affects the taste of food. It's possible that some PSP/CBD sufferers have a similar problem.

Certain medications can affect taste.

Also, a change in the consistency of saliva can cause taste problems.

(One also has to consider other conditions that may develop separately from PSP/CBD like acid reflux

or liver/biliary disease that can cause changes in taste, and often cause a lingering bad taste after food).

Hope you can sort this out, especially since one of the pleasures left in life for him, is the taste of good food.

Cheers

T.

[jillannf6 in reply to Hidden]

hi t

good that you hav e pinpointed the problem=it may be that the taste buds have gone for good or that there is a nasal problem which can b solved such as polyps or sinusitis (from personal experience)

or not

i cannot taste anything havent been able to smell 4 months either but i still enjoy my food and wine

life can be a b .....r but not really

lol JILL

[LynnO]

thank you all for your responses. He can still smell things pretty well, that's why the taste thing is confusing. He says that sometimes stuff doesn't taste like it used too or just taste like cardboard. He hasn't taken any different type of medicine, so I'm wondering if it is something with the amount of saliva. I'll look into this. Thanks again. LynnO

[cabbagecottage]

My hUsband never complains , except for the drooling which is excessive . His sense of smell has very poor and food is tasteless . I get over this by preparing stronger tasting food . Much so than than he use to have . I do use a lot of sweet chilli sauce these days lol

We have tried the eye drops , Kwells and the atropine patch to dry the mouth but nine of this has been suitable for him . He immediately starts hallucinating and becomes completely confused . It's a chicken or the egg .

[MoragR]

My father lost his sense of smell and taste well before the PSP was diagnosed. I've often wondered if it is connected.

[jillannf6]

OI Have no sense of taste or smell - i ha ve

PSPand like parkinsons it can be related (see strelley's reply above)

but i still enjoy my food and eat every meal as if ti were my last i.e. too quickly and stuffing food into my mouth

lol Jill

[zjillian]

My husband is the same.(PSP) I believe it has something to do with the sense of smell. He will only eat sweet things..absolutely refuses anything else. I sneak sugar into anything I want him to taste. I add protein powder to oatmeal cooked, served with milk, raisins, nuts, honey, and wheat bran. But basically he lives on peanut butter and jelly sandwiches and ice cream and cookies. I can't fight with him about eating. I also use a drink like Ensure. My father had Parkinson's disease and he too could not taste food or smell.

Good Luck,

Jill

[LynnO in reply to zjillian]

Chocolate shakes are the only thing at the moment that my husband says taste good still. I don't argue with what he eats as long as he's eating. Not too nutritious, but if it makes him happy I'm for it! He says he can still smell just fine, but I'm having my doubts. Thanks for your reply and good luck to you too!

Lynn