Questions to ask

[kryste]

Please email me any question you have that I can put infront of the Docs to give them something to look at when we go down to UCSF, for example my aunts eyes wont stay open unless she holds them but when she sleeps she sleeps with her eyes wide open and has a full conversation with someone and I can understand her perfectly but not when she is awake my email is [e-mail]

Thanks

[Christine47]

Questions that come to mind right now...

1) The use of Lokomat for leg movement... Does it Help?

2) What are the results of the the Transcranial Magnetic Stimulation Clinical Trial done at UCLA

3) Have they found any benefit to Vitamin D supplementation?

[kryste in reply to Christine47]

Thank you for your reply I think the more questions I ask if will at least give them something else to look into give them another direction to find some kind of cure if you think of anything else I am writing in a journal to take down of all the questions we have thank you

[Joandbear in reply to kryste]

Thank you Kryste

[Fadwa]

Did vitamine d help psp and also acupuncture (chinease needle) help in eating

[sidharth_roy]

Questions :

Any known drugs known to help .

How can patients who are not in US also participate .

Any foods to avoid

Any foods to prefer

[kryste in reply to sidharth_roy]

Fadwa Thank you for the questions, my aunt bev says she will not go on the feeding tube so I took her to a speach therapist and we watched on a monitor as she swallowed and drank different things so we knew what was trying to get in her lungs I would suggest you try this everyone is different it helped alot I will keep in touch,

[SWISS_MISS]

I am in the UK so thanks for the opportunity to raise some questions;

1. My wifes voice is so much better when she wakes up during the night. Why? Is it because she is relaxed?

2. Any feedback on taking Amantadine (Symmetrel). Should it improve balance etc..?

3. Are there any known benefits from taking the Nutrivene Curcumin product.

4. Any recommended foods either to eat or avoid.

5. Any recommendations to ease the affects of PSP

[kryste in reply to SWISS_MISS]

Thank you for your questions I will keep you posted.