Hi I'm new here. Dad just dx with PCP a couple weeks ago, but he's shown symptoms for years. His family doctor thought it was Parkinson's, sent him to a neurologist over a year ago, but he was a terrible doctor and sent Daddy home with no resolution. Recently he saw another neurologist who did the eye test and when Daddy couldn't look up, within 20 min's said he thought it was PSP. Daddy's main symptom is he falls backwards and he doesn't catch himself which causes him to land on his head and he's 6 feet tall so that's a big drop to land on one's head! In retrospect I see other signs (of PSP) I'd mistakenly written off as him getting older. He's 79. His wife is his primary caretaker but she works fulltime. She usually has a family member sit with him when she's at work 8 hours a day, who live a couple blocks from them. I live an hour away and have been making it a point to visit at least once a wk for the last few months after he was hospitalized due to a severe fall. It's so sad. Bless his heart, literally and figuratively as he had a pacemaker put in while in hospital recently. His mind is still intact for the most part. He has occasional tremor in one hand. He gulps his food unlike before PSP. He's not nearly as smart but he can keep up in a conversation and has plenty memories from long ago. He laughs at the right times etc. I hope his symptoms don't increase quickly.. or ever of course but.. this could get so sad and hard. I have a brother and a sister, both of whom contacted him a few times a year prior to the PSP symptoms getting so bad, but now, they say "it's too hard" on THEM!!!!! My poor Dad. He was always my rock, a strong and honorable man. To anyone who's read all the way to this ending.. THANK YOU! And please know I pray for us all. ~S
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