seems unable to close eyes

[kay1]

Husband now even sleeps with his eyes partially open, they are so glazed and fixed, is this just another box to be ticked in the long list of symptoms?

[ray-wiffen-1958]

hi kay

I would think its probley down to the muscles in the

eye lids not being relaxed so they wont stay shut

i dont know but i have heard people say that you

can get botox injections to help with this problem

take care

ray x

[Louise-Alabaster]

It is Kay yes - we used to try so hard to close dads eyes but they wouldnt, try just gently laying a flannel over his head just covering his eyes - keeps it a bit darker for them xx

[Elli3]

Hi Kay, yes this is just one more thing to deal with, my husband wears sunglasses to try to rest his eyes, wrap around ones are good they can be worn over normal glasses. best wishes x

[ashav]

hi kay,

yes, eye muscle movements do get affected. involuntary closure or lack of it happens.

you must try and keep his eyes moisturized with an eye gel. your doctor should be able to prescribe one.

[kay1]

Thank you all for such helpful advice x

[Faiza]

Hi Kay,

My dad struggles with keeping one of his eyes open. It waters quite a lot, twitches and he finds it very uncomfortable.

His consultant has told him that needs to have Botox. So we're waiting for his appointment to come through x

[kay1]

Hi Faiza

It seems everything about PSP creates more problems and discomfort for the patient and family, just when you adjust along comes another symptom

x

[Mira1]

Hi Everyone,

Most important for the partially opened eyes is to use eye drops with a gel-like consistency to prevent roughness on the cornea. Use them as often as possible. Tearing is often the result of 'dry eye' caused by the lack of blinking in PSP patients.

[jillannf6]

hi

i have PSP and my eyes are closing more = they r very dry as i am not blinking and cannot wear my contact lenses so weaing specs all he itme

where can the wrap around sunglgasses be bought as i am extra sensitive 2 the light too?

thanks jill

[kay1]

Hi - wrap around sunglasses are not difficult to purchase, most large stores would sell them, even on-line. They do really make a difference. My husband is also sensetive to the light, he is also haveing gel drops three times a day. Hope you are successful if your search for the glasses.

x

[PSPA_Samantha]

There are several issues with the eyes in PSP/CBD:

Blepharospasm is an inability to keep the eyelids open and this can be treated with botox by your neurologist. Some people blink less which means they are more prone to getting infections in the eye-dust and debris is not kept out by the eyelashes, and antibiotic creams may be necessary. The surface of the eye can be scratched by the eyelid as it becomes dry, so artificial tears need to be used several times a day (prescribed by the GP). As some of you have described, photophobia (a dislike of light) can also be a problem and wrap around sunglasses can be helpful for this.

Jill (PSPA nurse) has discussed this in a previous blog. Do contact the PSPA nurse in your area to discuss further.

PSPA Nurse.

[Lorra]

sorry to say yes he'll need drops for his eyes as they'll get sore talk to your destrict nurse and Dr for advice. Lorra

[kay1]

thank you - will do. x