My dad was diagnosed in March 2009 with PSP at the age of 70. Prior to this, he had experienced a number of falls and had a number of car accidents through lapses in judgment (I just thought he was a bad driver). It was relief to finally get a diagnosis, but it has been quite an adjustment. Dad's quite a proud man, so it was difficult to get him to agree to use a zimmer frame. You can imagine the arguments we had when it finally came to getting a carer to help him wash himself. Even now, he's always asking how his hair is looking! He is wheelchair bound and has to wear pads. It's awful seeing my dad the way he is now. Strangely, he's smiling a lot now than he did before he was diagnosed. I've always had a pretty good relationship with my dad (typical daddy's girl) so we're always laughing and joking about things. His speech is progressively getting worse. Although he loves his floor lift...as do my niece and nephew (in their eyes, it's a fantastic toy)
Mum's found things quite difficult. English isn't her first language and she wasn't very confident at speaking it. Initially, she struggled to grasp he had PSP. Now, she's conversing well with his consultants. I still go to translate as there's still things she doesn't understand.
Dad's having botox soon as he's experiencing eye spasms. He's a bit apprehensive, but I told him all the celebs are doing it! He's now excited about getting it done!
I'm glad this site has been set up so that we can share our experiences - great idea!