Dad's Been Picked!

[Faiza]

I've just found out that my dads been picked for the PSP trials! Excited!

[ray-wiffen-1958]

Hi faiza.

Thats great news about the psp trials i hope your

dad gets on well with it congratulations to you all,

take care

ray

[jillannf6 in reply to ray-wiffen-1958]

hi faiza

great news

davunetide??

i hope your dad gets on well with the trial (of the real thing?)

jill x

[Faiza]

Hi Ray,

Thank you

[Faiza]

Hi Jill,

Yes it's the Davunetide trials. He'll probably be the one who gets the placebo!

Thank you for also posting on my blog on PSP trials to say that trials are going on at Salford. I used to live in Salford - when I went to University.

I'll keep everyone posted. I just posted the patient consent form, so should hear back soon as to when he has to go in for his initial assessment.

X

[Fiona_McL]

Great news Super to have something to be positive about in PSP world! I'm looking forward to the updates

Fiona x

[kay1]

All watching this space and praying for good positive news for all PSP patients and families. x

[Kathy]

Hope he gets "the real thing" and that it works for him! Keeping fingers crossed xxx

[Faiza]

Hi Fiona, Kay and Kathy,

Thank you for your kind words. I'll be blogging a lot more once his trial starts. I send the forms off yesterday, so hopefully should hear soon when he has to go for his initial assessment.

X

[SuzieQ]

At last some good news! Hope all goes well for your dad and as the others have said, I hope he gets the "real thing". We are all looking out for you and your dad and who knows - this could be the breakthrough we are looking for to help this horrid disease. Fingers crossed all goes well and there are some positive results. Please keep us updated of his progress. xx

[Faiza]

Hi Suzie,

Thank you for your kind words. It's truly appreciated x

[hmfsli]

That is good news. Looking forward to hearing how you all get on.

[janeymac]

Hi Fazia

I'm so pleased for your Dad. My Mother in Law just started the trials this week in Salford. We are hoping she receives the drug and not the placebo however we are also positive to be a part of something which could benefit so many in the future.

[Louise-Alabaster]

Brilliant news!! Fingers crossed it has an effect and he gets some releif - very happy for all your family xxx