Pain in upper back : Hi can anyone help... - Hughes Syndrome -...

Hughes Syndrome - APS Support

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Pain in upper back

Greenmil3
Greenmil3

Hi can anyone help I hurt my stomach in my desk pulled my chair in too fast!

That was bad enough but today I have a high intensity pain in my upper back along with the pain in my stomach.

I am on an INR of 4.5 do you think it’s possible I may have done serious damage.

Thanks

26 Replies
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KellyInTexas
KellyInTexasAdministrator

Without have it seen it’s impossible to know.

On warfarin anything is possible.

Newest guidelines ( if going into A&E ) is three layers of protection . If you have a cotton two layer mask- no problem! Just add one more layer to that. Or filter of some kind? One disposable mask over it even when you arrive there?

Anything new should be checked out.

Thanks Kelly

KellyInTexas
KellyInTexasAdministrator in reply to Greenmil3

Let us know how you are ... so we don’t worry...

HollyHeski
HollyHeskiAdministrator

Sadly yes a trip to A & E, got to be checked.

Let us know how you get on?

Greenmil3
Greenmil3 in reply to HollyHeski

Ok going to head down there shortly and make sure my phone is charged as it’s bound to be a long wait

KellyInTexas
KellyInTexasAdministrator in reply to Greenmil3

Good thinking!

Hoping you don’t have a bleed going on, or other weirdness we APS people attract like magnets... split muscle due to connective tissue weakness... tendencies along those lines plus a hematoma sort of thing..

We get the, “with you anything is possible” diagnosis..... don’t we...

HollyHeski
HollyHeskiAdministrator in reply to Greenmil3

Keep safe, worth the wait and hopefully just reassurance required.

What is your therapeutic range decided to be? If you usually have an INR of 4.5 and you have chequed it by selftesting today that it was 4.5 then it should perhaps be ok. But if you have not tested your INR today you should do that I think.

Greenmil3
Greenmil3 in reply to Lure2

Lure my self test isn’t going to well Prof Hunt wanted six comparisons with venous but the coagucheck is all over the place but was venous tested Wednesday last week

Lure2
Lure2 in reply to Greenmil3

I do hope they cheque your INR today! Good Luck

Just as an update 111 online said A&E 111 telephone said they are calling an ambulance so waiting for that to arrive now! Not too sure what they think is wrong

How are you doing? I’ve ripped muscles twice. The first time, a couple of years ago trying to transfer hubby. Both sides of sheaths (like where a 6 pack would be!! Then did just the one side last year. Getting a rug out from husband’s wheelchair wheels. It is extremely painful and not much can be done except strong painkillers and not moving about too much!! You will probably go very bruised, black and blue. You are doing the right thing going to hospital, I left it 6 days the first time, getting worse every day and needed 7 hours of blood transfusions! Do take care, let us know how you get on.

As an update they checked via cat scan no bleeds and no evidence of much with my organs but noticed something on my lungs so one chest scan later and being referred to lung specialist as he has concerns about what he saw so maybe a blessing in disguise.

Lure2
Lure2 in reply to Greenmil3

Glad to hear it was no bleed. Perhaps your INR was low at the time when it happened. Take good care of your anticoagulation and ask for an Echocardiographie with doppler on your lungs. Hope the Doctors know something about our illness!

HollyHeski
HollyHeskiAdministrator in reply to Greenmil3

Glad you are being checked out and not a bleed. Now need to sort the lung out - let us know how you get on?

Thanks for update. Hope its nothing serious.

KellyInTexas
KellyInTexasAdministrator

Thank you for update. Will wait for lung update. Can that cause the pain I wonder...

I think I’m going mad I have, what with my brain and memory, a strong memory of the AED Doc coming and seeing me after the chest X Ray and saying on comparison with my 2014 x ray I needed investigations and referral. My GP wasn’t informed so I called the Hospital spoke to the ED and they said the notes say no change noted between the 2014 and the Tuesday night one! I now have no idea if my poor memory has played a cruel trick on me as it can do or if they changed their minds. I feel like I am mad and can’t trust my own memory the fun of the cerebral APS! I have now ordered a copy of my notes and X rays from the hospital to see if I am mental. I did ask the admin to see if the AED doc could call me and they said they would ask but couldn’t guarantee. Sorry for the long update but it’s hard when you have to constantly mistrust your own memories that you can’t be sure are accurate as you can’t piece together previous days. I feel so low

HollyHeski
HollyHeskiAdministrator

Don't feel low, its understandable, with APS and being in severe pain!

At least you've asked for your records and x ray.

Your GP can request another x ray, especially if you are still in pain.

How is the pain?

Greenmil3
Greenmil3 in reply to HollyHeski

It’s under control with all my pain meds so coping just about, decided any more interaction with med staff will be with their permission recorded on my phone as I just can’t rely on myself any more

HollyHeski
HollyHeskiAdministrator

They will understand that, my sister in law records every conversation with friends, family etc, as her memory is so bad.

Keep in control of the pain, if persists or gets worse, I'm sorry - go back to A & E or speak to your GP - dont ignore too long.

By the way pain meds can also effect the memory and concentration.

Greenmil3
Greenmil3 in reply to HollyHeski

Holly mine is just the continuing deterioration and increase in white matter lesions as the warfarin even at 4.5 INR isn’t stopping the degeneration it used to be last week I couldn’t remember past now it’s the same day at times! I am looking after the pain and my GP is being great and said to call if I need anything. Just waiting for my next appointment with Prof Hunt although guess that will be by phone

HollyHeski
HollyHeskiAdministrator

I understand, just didn't want you being so hard on yourself.

Recording important things is good too.

Rest up x

Greenmil3
Greenmil3 in reply to HollyHeski

Thanks for you support and care much appreciated xx

Do you have any bruising?

I will suggest that you should see a GP

As HollyHesky says also; do not be too hard on yourself. Most of us have bad memory. If you can try to keep the INR at a steady level as to PEs that must help I am sure.

I also write everything up on papers. Good that you get as much copies you can get and that you soon (I hope) can have a talk with Prof Hunt who knows you.

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