apple.news/ATamuFhw_S6SIgKm...
So what does this mean for us?
apple.news/ATamuFhw_S6SIgKm...
So what does this mean for us?
What it means currently is a lot of research ongoing, hopefully there will be decent information sharing between scientists/medical researchers, there will be plenty to read and digest over the up and coming weeks and months. MaryF
Mary,
And since they are testing, they will try and find drugs for autoantibodies that are causing inflammation and clots. One thing positive out of this Pandemic of covid 19 is helping to understand APS (our bodies are making autoantibodies same as in covid) and more doctors be aware/knowledge of micoclots ect. Especially Neurologist, Rheumatologist, Dermatologist, Ophthalmolhoist ect. It will take time but knowledge everything
I wonder if the means those of us with APS and already on warfarin are more at risk or less!?
It’ll very very interesting to see. My APS was associated with obstretics so I’m very curious to see how it affects all of us with Antiphospholipid syndrome
Can only give my personal experience but my husband was unwell for a few days at the beginning of March after a visit to A&E for dvt. Few days later I started with all kinds of symptoms - it was early days then so the long list of symptoms hadn't been recognised - I was very unwell for weeks and it is only now that I am beginning to realise. I didn't fit the criteria for a test but my GP was certain that I had covid. Apart from a short period of steroids (new diagnosis of inflammatory arthritis) I haven't really felt well and no energy, so possibly long covid?
My INR has rarely been stable during this time unusual for me and the clinic nurse told me that many of the covid patients had had erratic results.
I have been unwell the last month following nerve pain following a tooth extraction and during that time had to test 7/8 times.
It is at times like this that I get sick of APS and the way it affects so many areas of my life.