APS proven: Scientists Have Uncovered... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,397 members10,602 posts

APS proven: Scientists Have Uncovered the Likely Cause of a Serious COVID-19 Symptom: Blood Clotting

MelissaHedden profile image
9 Replies

apple.news/ATamuFhw_S6SIgKm...

So what does this mean for us?

Written by
MelissaHedden profile image
MelissaHedden
To view profiles and participate in discussions please or .
9 Replies
MaryF profile image
MaryFAdministrator

What it means currently is a lot of research ongoing, hopefully there will be decent information sharing between scientists/medical researchers, there will be plenty to read and digest over the up and coming weeks and months. MaryF

MelissaHedden profile image
MelissaHedden in reply to MaryF

Will you keep us updated in case I miss anything

wgsuzy profile image
wgsuzy in reply to MaryF

Mary,

And since they are testing, they will try and find drugs for autoantibodies that are causing inflammation and clots. One thing positive out of this Pandemic of covid 19 is helping to understand APS (our bodies are making autoantibodies same as in covid) and more doctors be aware/knowledge of micoclots ect. Especially Neurologist, Rheumatologist, Dermatologist, Ophthalmolhoist ect. It will take time but knowledge everything

MaryF profile image
MaryFAdministrator in reply to wgsuzy

Yes, I agree. MaryF

Bobbydoodle profile image
Bobbydoodle

I wonder if the means those of us with APS and already on warfarin are more at risk or less!?

MelissaHedden profile image
MelissaHedden in reply to Bobbydoodle

It’ll very very interesting to see. My APS was associated with obstretics so I’m very curious to see how it affects all of us with Antiphospholipid syndrome

Lure2 profile image
Lure2 in reply to Bobbydoodle

When I asked my hospital they said it was good that i was already on Warfarin.

panda60 profile image
panda60 in reply to Bobbydoodle

Can only give my personal experience but my husband was unwell for a few days at the beginning of March after a visit to A&E for dvt. Few days later I started with all kinds of symptoms - it was early days then so the long list of symptoms hadn't been recognised - I was very unwell for weeks and it is only now that I am beginning to realise. I didn't fit the criteria for a test but my GP was certain that I had covid. Apart from a short period of steroids (new diagnosis of inflammatory arthritis) I haven't really felt well and no energy, so possibly long covid?

My INR has rarely been stable during this time unusual for me and the clinic nurse told me that many of the covid patients had had erratic results.

I have been unwell the last month following nerve pain following a tooth extraction and during that time had to test 7/8 times.

It is at times like this that I get sick of APS and the way it affects so many areas of my life.

KellyInTexas profile image
KellyInTexasAdministrator in reply to panda60

😔😔😔

Not what you're looking for?

You may also like...

Is this a symptom of APS?

Hello everyone, I hope you are all well? I am really struggling with cold night sweats, waking up...

Is breathlessness a symptom of APS?

I am pregnant and have had one previous pregnancy which ended when i lost my baby at 22 weeks and...

Does covid cause a positive aps results?

I had covid in January 2022, tested positive for beta 2 glycoprotein 4 weeks later, then doc tested...

EULAR Treatment Recommendations for the Blood Clotting Disorder APS

Whitney J. Palmer July 9, 2019 The European League Against Rheumatism (EULAR) has prepared the...

How many of you have just APS without diagnosis of Lupus? Just wondering as I don't have Lupus but do have serious APS.