I was in supported housing for intensive physio etc
Both the OT and physio were concerned that I was getting very breathless on exercise etc so measured my oxygen levels which were in the low seventies, high sixties.
With oxygen levels so they were not prepared to take responsibility for my care which I fully understood.
So back to hosp medics are still trying different things when all I really need is oxygen when walking about
To make life even more interesting I have cellulitis in one leg and more of a concern I had a slight stroke tho fortunately doesn’t seem to have caused too much damage, they called my son in and have chatted to him about the way forward.
Which is good as at 24 he’s still quite young to deal with things like this, my former partner had moved up this way not too happy about that but at least H has someone to talk too, and not just the cats.
Thanks for reading another waffly post
Love and hugs
J
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judes
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Sorry to hear your struggling with your health at this present time Judes I hope you feel better soon. At least it was only a slight stroke which was a blessing but frightening nevertheless.
Your in our thoughts and not waffling we like to hear from our fellow members on here. Jill Xx
We dont mind how ever many posts you put on here, at least most of us understand the complications of APS, more than some medics! Specially the ones that have seen you!Presume your back in hospital and not in supported home?
Are the antibiotics helping the cellulitis?
Is your INR back at good level, to stop another stroke?
Now oxygen, you've had a massive infection and its it's going to take time to heal, OT abd physio know that but sounds like they're panicking a bit, although 60/70s is low, what is the level at rest? That's what they need to work on?
If they can get you to an acceptable level, high enough to sustain say making a cuppa, then that's a start.
Keep strong and persevere, you can overcome this, with just your sense of humour alone.
My resting rate is quite good at 90/92 on a good day it’s just when I start to move everything makes a downward dive
My INR has been over the last month has been erratic but that’s not unusual
A few years ago I ended up in itu with pneumonia, because I was in there a wee while I had PTSD afterwards one of the images I had was a big orange fire ball surrounded by black stuff had the same image this week with my stroke I thought if the stroke doesn’t kill me this image will, really scared me. Strange when you think you’ve put every thing behind you it comes back to bite you.
My resting rate is quite good at 90/92 on a good day it’s just when I start to move everything makes a downward dive
My INR has been over the last month has been erratic but that’s not unusual
A few years ago I ended up in itu with pneumonia, because I was in there a wee while I had PTSD afterwards one of the images I had was a big orange fire ball surrounded by black stuff had the same image this week with my stroke I thought if the stroke doesn’t kill me this image will, really scared me. Strange when you think you’ve put every thing behind you it comes back to bite you.
Your spirit is shining through, I am so sorry life is currently tricky for you. I hope over time with the right care you will continue to progress in the right direction. Do keep writing, it is good for you and certainly good for us to hear about your progress!💜 MaryF
I think i'd be ready to jump off a cliff if I'd gone through all that you have! I hope you can turn the corner properly soon and I'm sending a little sunshine from Australia-30c today
You see many people with copd that have their own small bottles of oxygen they can carry discreetly about with them.Can that not be arranged for when you go home.It would be a great help
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Just diagnosed with APS
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Left side Face, arm & leg went numb - not convinced a&e have handle this right
Yet another hospital appt-really stressed!
