Found this on social media

[MaryF]

I think we can all relate to this.... after my hour of physio, plus two hours of skin treatments today, I did feel irritated briefly at the amount of time it is taking currently, but hey ho....it will get me better more quickly, alongside the hours of healthy food preparation I do.

[Wittycjt]

It’s hard to put ourselves first but it MUST be done

[Jillymo]

I would like to have the energy to stand for hour's making healthy meals, if It pings in the microwave that is what I eat........although I am gluten free.

I did manage to put a salmon salad on a plate yesterday.

Dont talk about skin, mine is constantly in need of moisture due to the sjogrens........it's that thirsty for moisture its bordering alcoholism.

Its costing me a fortune in lotions and potions

My painful back has yet again been referred to the phisio dept.........I have lost count of how many times I have been to that dept but hey ho if the NHS can afford it I might, just might, get an epidural to kill my pain.

[MaryF Administrator in reply to Jillymo]

I hope you feel better soon, I use coconut oil on my skin and aloe vera gel, a lot of it, but works better than anything else. MaryF

[Jillymo in reply to MaryF]

I cant say the aloe vera gel worked for me but I have a large tub of coconut oil and argan oil which works well on my elbow's.

What with back pain due to a curvature of my spine which had left me with disk problem's, chest tightness and pain.......almost like inflammation going on somewhere and the most awful pain in my feet which I feel could be tendonitis, I can honestly say I am feeling pretty rough at the moment.

I feel as if I am going round in circles and getting nowhere because they simply do not look outside the box and your not given the time needed in the consulting room or surgery.

Wow is me........not really I am used to this wretched illness we just have to soldier on.

[MaryF Administrator in reply to Jillymo]

I did not improve at all until I had self funded my LDN and also my NDT, however at the moment the worst flare I have had for years, of everything, thank you menopause etc. Thankfully some of the things I do, do work. Keep your chin up, mine is etc MaryF

[leakeadea]

I love this, I will show it to my mother when I can manage to get out of the house to see her again.

Whenever my brother or sister take my mother out for the afternoon, I tell her that she must treat herself as if she has the flu for the next 2-3 days afterwards.

I tell her to stay in her pj's, and to rest and relax and just watch TV etc.

If she doesn't do this then the pain and exhaustion she's in from going out that one time, will turn into a full blown flare up and she will then be unwell for weeks afterwards.

I learnt this the hard way and ended up with flare after flare, trying to do too much when my body had already had enough!

I have learned to be kind to myself and also learned to let others take care of me too. After the terrible reaction and flare up I recently experienced post angiogram and right heart catheter, I arranged for carers to come in every day late afternoon, to make me something to eat and to help me with any personal care I couldn't manage alone. It cost a fortune but thankfully my mum was able to help me with the cost.

It was worth it tho, as I think I'm recovering much more quickly than I would have, had I not had that extra help and at least one decent meal each day.