NattoKinase and APS

[badegirl]

Hey Guys, I am at a loss.

Warfarin has stopped working for me on a regular dosage. Now I am on 5 tablets of warfarin (25mg) plus 2 aspirins and 2 clexanes a day. I spent this August in agony with migraine due to low inr (between 1.06 and 1.33). I am warfarin resistant and my orthomolecular doctor suggested me to try nattokinase. According to her, there are several researches showing good results on thinning the blood in patients with APS and this could help my resistance in case I am unable to buy Marcoumar from Germany. Has anyone tried nattokinase? I only found one discussion regarding this issue in health unlock, but honestly, I don't know what else to do. I cannot afford buying so many clexanes. I cannot stand the migraines anylonger. What do you think?

[Jillymo]

I totally agree with the administrator. You need to be properly assessed by a qualified consultant that has good expertise in treating Aps.

I myself am unable to tolerate warfarin or heparin and now on clopidogrel and aspirin. I am not surprised you are suffering dreadful migraines you INR is very low. Are you not under the care of a hematologist ?

I hope you are under the care of a rheumatologist who has carried out the correct testing and scan's.

Your are putting your self at risk from not being medicated correctly.

I sincerely hope you seek professional help and get some relief soon.

[Lauren2121]

I use nattokinase.

Works well, no side effects that I can tell. Aged garlic is also a natural blood thinner. Also watching what you eat is very helpful (eg AIP diet).

[MaryF Administrator]

HI, please make sure that you get registered with a proper Hughes Syndrome/APS consultant. I know of your medication and some on here are using it with good results, however as it is not standard in terms of it's use and application we can't really comment that much on it. Many things do help the blood become thinner, however if on Warfarin it can really upset the INR, adding new things in, whether herbal or otherwise. I am on a large dose of fish oil which helps me immensely, always has done, but again it is not advised to go it alone with these things, you need the right doctor involved with your care MaryF

[KKEBUBE in reply to MaryF]

Hello MaryF, I hope the fish oil is very great for blood thinning. Are you still using it?

[MaryF Administrator in reply to KKEBUBE]

I notice you have just joined recently, do you have a diagnosis for Hughes Syndrome/APS? To be clear, supplements of any sort need to be checked with a medical professional, fish oil can make you more likely to bleed if on Warfarin, any form of supplement must be checked, for any possible interaction. MaryF

[KKEBUBE in reply to MaryF]

Yes, you are right. I have seen those on fish oil and jettison warfarin. Most also are on plant based raw foods which have reversed their autoimmune diseases. So I am here to know if such persons are here that use nutrition too. Your statement on fish oil caught my attention and I am pleased knowing it.

[MaryF Administrator in reply to KKEBUBE]

Can you please confirm that you have the diagnosis above, before you stay on this forum, thank you. MaryF

[KKEBUBE in reply to MaryF]

Mary, I confirm it. Thank you.

[HollyHeski Administrator in reply to KKEBUBE]

Hi, welcome I see you have just joined and confirm you have Hughes/APS.

This is an old thread so can I suggest you post your own question, telling us a bit more about yourself, so we can then answer direct to you rather than on this post. Thank you

[KKEBUBE]

I hope the Nattokinase gave you great results.