Anyone on warfarin with depression?

[badegirl]

Hey guys, long time I haven't post anything here. Hope you're fine. So, I was taking Marcoumar and it was working beautifully. However, the pharmaceutical lab decided to take it off the market due to "commercial interest". I went back to marevan (to which I am resistant) and of course it not working at all. My last INR was 1,24 when it should be close to 3. I'm experiencing an overwhelming sadness, feel like crying all the time I am eager to stay in bed for as long as I can. Has anyone ever experienced these feelings while on warfarin?

[daisyd]

Yes when my INR is low,I take citalopram for depression but it’s always worse when INR low that’s when I know to self test

I think you should discuss this as soon as possible with a Doctor

Wishing you well

[MaryF Administrator]

Can you talk to your main consultant for some advice regarding helping your INR to the right target level. I think a lot of our members feel awful not just physically when their INR is compromised. I do hope you improve soon. MaryF

[Lure2]

Hope you have a Specialist for your APS! I do not know your symptoms but many of us need an INR close to 4.0 to feel ok and without clots etc.

Good to selftest also.

Do you have a tatoo now as you thought about doing 2 years ago?/Kerstin

[badegirl in reply to Lure2]

Yes, I do have my tattoo done. Did it last year. Impressive how much it has helped me already. Doctors do change their approach when they see the tattoo. They are more more careful to deal with me now.

[hihannula in reply to badegirl]

Hi bade girl. Just curious, what kind of tatoo did you get and did you get an infection or bleed much. Also did it hurt? I’d like to get one but too scared!!

[GinaD]

Dealing with a misunderstood chronic illness, especially when treatment must be individualized is depressing enough. Then when doctors dont know what to do, it becomes more depressing. In my case, prior diagnosis, ( and sadly, some continuing to this day) some doctors projected their confusion onto me and told me my depression was causing the symptoms. An even bigger downer!

Persistent symptoms of a chronic disease is depressing. Particularly when your personal medical communityy wont listen to you. I'm sending positive thoughts your way. Do try to find a more experienced and respectful medical crew.

[lupus-support1 Administrator in reply to GinaD]

Absolutely! Depression, as a result of living with a chronic disease, is NOT "abnormal"! On the contrary, not being depressed ever, is abnormal. This is a reactive depression.

If the depression is such that it means an inability to deal with daily life ie lying in bed all day, withdrawn, having no pleasure whatsoever, for example, in seeing family, friends etc then this level of severe depression "may" require medication.

However, what should happen is the availability of counselling/psychotherapy as routine, for anyone struck down with either an acute and serious disease, or a chronic "dis-ease" which means we are no longer able to feel at ease with our life.

Talking to someone can be very helpful. First, you don't have to worry about hurt feelings as the therapist is not a friend or family. Sometimes, it evokes memories from the past and all this comes together in a depressive state.

LUpus Patients Understanding & Support (LUPUS) was established to provide online psychological support because there was/is little offered other than medication, which doesn't necessarily help. In fact, doctors don't know how antidepressants work!

[Zamalek]

When my INR is low, I experience many cognitive problems. Memory loss of course

everyone must know, but also a lowering of mood. I don't think it is the Warfarin,

it's the actual condition APS, the blood sludges in the brain, and effects my mood

adversely.

[annie330]

Really sorry but I was taken off warfarin early 2014 and I inject tinzaparin. This is because I started having seizures late 2013 and then my INR went really low and was told that the anti-seizure meds effect warfarin. I finally got to try to go back to warfarin earlier this year after being on a stable dose of anti seizure meds but unfortunately even on 30g of warfarin a day my INR was still below 1.3 so I had to stop trying and stick with injecting tinzaparin.

Hope someone can help.

[hihannula in reply to annie330]

I was having seizures too and was on a drug that made me psychotic so I decided to try medical marijuana (high levels of the CBD oil) and I have not had one seizure in a year. My vision is 75% improved, I sleep at night, my anxiety attacks are completely gone, I’m down 3 mg on my prednisone, and off the seizure med and off my Ativan. I’m happier, and feel more energetic!

Now I just need to find a way to get off warfarin!!! I have a team of cannabis specialists that I can call if need to discuss anything I need to know . I don’t know if it’s legal where you live. In Canada it’s legal and I thank the Lord it is, because my life has turned around for the good. I still have bad days but not as long. I’m still dealing with heart disease too and the breathing can get rough at times!

Give it a try. Google the story called “Charlottes Web” about a girl who had up to 100 seizers per day. Has none now! Please write back and let me know what you think. All the best!

Holly

[Wittycjt in reply to hihannula]

How are you dosing this may I ask?

[Sunf]

Yeah I'm the same as you, and it's not a good feeling, and my INR is 1.25 far too low. On the Island we don't get doctors that seem to know what to do, so I'm not sure what is going to happen to me.

[Lure2 in reply to Sunf]

Hi Sunf,

On what island do you live? You should look for a Specialist of autoimmun illnesses, which is very important. If you have got Antiphospholipidsyndrome/Hughes syndrom, an INR of 1.25 is not anticoagulation at all. We usually need an INR of 3.5 - 4.0 depending on symptoms. Properly anticoagulated is the key to feel better.