Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,402 members•10,612 posts

All posts for August 2017

Bruising

Just a quick question this time LOL! I tend to drag on, anyway my question is from my last two surgeries I suffered from massive and almost black bruises....

Just a quick question this time LOL! I tend to drag on, anyway my question is ...

Salmonious

•7 years ago

3 Replies

Just not feeling well, Hughes syndrome?

For the last two days I have been completely off and I can't figure it out. I feel as though I have been under some form of attack. My arthritis is the worse...

For the last two days I have been completely off and I can't figure it out. I f...

Salmonious

•7 years ago

20 Replies

Headaches & Migranes 😔

I have been suffering more and more with headaches and migranes. Some weeks it's feel like I have them daily, other a couple of times a week. For those that...

I have been suffering more and more with headaches and migranes. Some weeks it's...

chelb29

•7 years ago

31 Replies

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chest swelling

hi, my boyfriend has a swollen chest on the left side as well as rib swelling. what can cause this?

hi, my boyfriend has a swollen chest on the left side as well as rib swelling. w...

dimpz90

•7 years ago

1 Reply

Could I have APS

I am on warfarin for pulmonary embolisms in both lungs coming from a large clot in my groin, which is still there. When I went to the ER, they said I had...

I am on warfarin for pulmonary embolisms in both lungs coming from a large clot ...

Redheadchik

•7 years ago

4 Replies

Serena Williams has a life threatening condition

Hi All, I see that Serena Williams "has a potentially life threatening medical condition" and has to inject anticoagulants daily during her pregnancy. APS...

Hi All, I see that Serena Williams "has a potentially life threatening medical ...

suntap

•7 years ago

5 Replies

Misdiagnosed with MS - lesions but no clots

Hi Everyone! My story began when I was in my 20's. I took a routine blood screening and was told to my horror that I had tested positive for syphilis! Well,...

Hi Everyone! My story began when I was in my 20's. I took a routine blood scree...

Mrmcb

•7 years ago

8 Replies

Clexane injections newly diagnosed blood clot

Hi there, I'm new to the group and to all this sticky blood, i was rushed to hospital with swollen leg, after numerous scans and no diagnosis, finally i have...

Hi there, I'm new to the group and to all this sticky blood, i was rushed to hos...

Hevajane73

•7 years ago

7 Replies

APS

Suffering from APS since 1982. I'm always interested in this autoimmune problem. New technologies on treatments, stuff like that, plus others n their stories.

Suffering from APS since 1982. I'm always interested in this autoimmune problem....

TheJedMan

•7 years ago

9 Replies

Meet and greet..

Does anyone know of any APS/ Hughes syndrome meet and greets in the UK?

Rosiek90

•7 years ago

6 Replies

getting random mails about posts that i did not write or reply to.

hi couldn't work out how to contact admin.got about 6 emails regarding a post o wrote 3 years ago, not me.... so some problem with it. thanks

hi couldn't work out how to contact admin.got about 6 emails regarding a post o ...

Lozzaa

•7 years ago

8 Replies

Subcutaneous injecting sites

For all who need a broader variety of potential injecting sites 👍

Rosiek90

•7 years ago

9 Replies

INR 2.5 -3.5

My doc says it's best to be at an INR of 2.5 -3.5 if you have Antiphospholipid syndrome. I feel best at 3-3.5.

My doc says it's best to be at an INR of 2.5 -3.5 if you have Antiphospholipid s...

nishiz

•7 years ago

2 Replies

DOAC anticoagulants

Hi all, Has or is anybody medicated with Apixaban (eliquis) Or Edoxaban? If so, how do you find it? So you prefer it to other anticoagulants and why?...

Hi all, Has or is anybody medicated with Apixaban (eliquis) Or Edoxaban? If ...

Rosiek90

•7 years ago

35 Replies

Hey

Hi I thought I'd just introduce myself as I'm new to this. I'm Rosie (as you can probably see by my user name 🙂) I'm 27, symptoms started when I was 8. With...

Hi I thought I'd just introduce myself as I'm new to this. I'm Rosie (as you can...

Rosiek90

•7 years ago

42 Replies

Rosacea, cracking teeth, and tingling feet! :-/

Had 2 blood clots after a surgery and one went to my right lung one to my brain. Had a stroke that took out left occipital lobe region. Then they did test and...

Had 2 blood clots after a surgery and one went to my right lung one to my brain....

Kmobi

•7 years ago

14 Replies

Update-Chemo/Radiation on Lovonox

Hi Friends - Ok...Oncologist is worried that I will bleed from Lovonox injections but will keep me on it so as not to risk getting clots. The Chemo meds make...

Hi Friends - Ok...Oncologist is worried that I will bleed from Lovonox injection...

Jamaica1951

•7 years ago

8 Replies

Balance issues

Well 2 weeks ago I underwent 5 hours of balance test in a rotary chair and caloric tests not fun I was exhausted. Saw my ENT yesterday and was told I had...

Well 2 weeks ago I underwent 5 hours of balance test in a rotary chair and calor...

falling2peices

•7 years ago

45 Replies

GOOD NEWS for a change

Hello. I now have hope!!! For the past 18 months I had been falling, unexpectedly, at least once a week. No warning, no sensation, no dizziness - my legs just...

Hello. I now have hope!!! For the past 18 months I had been falling, unexpectedl...

snorkle272

•7 years ago

9 Replies

Generic Plaquenil

I have been reading Penned Posts from the past. I noticed a post re generic and brand name Plaquenil. I have been on GENERIC Plaquenil for years--maybe since...

I have been reading Penned Posts from the past. I noticed a post re generic and ...

ndstephens49

•7 years ago

8 Replies

First time posting.........

Hi I joined this forum many months ago and have found it very useful. However although nervous thought it best to post my own post about specific issues to see...

Hi I joined this forum many months ago and have found it very useful. However al...

chelb29

•7 years ago

16 Replies

Plaquenil and pregnancy

Hi there! I recently read on an APS Facebook group that Plaquenil might improve pregnancy outcomes in women with APS. For those of you who've taken plaquenil...

Hi there! I recently read on an APS Facebook group that Plaquenil might improve ...

TiffanyD78

•7 years ago

2 Replies

APS- Genetic?

hi I am new to the group and just wondering if there are any reports on aps being passed on to your children? I am 10 years diagnosed after suffering a PE...

hi I am new to the group and just wondering if there are any reports on aps bein...

Lambchop1982

•7 years ago

6 Replies

new here....

Hello, I am 53 y/o male that has survived 3 pulmonary embolisms in the last 8 yrs. Dr's have no clue other than it seems to come from left leg. I have been...

Hello, I am 53 y/o male that has survived 3 pulmonary embolisms in the last 8 yr...

ronnt

•7 years ago

10 Replies

Guys I am getting beyond scared!

I have had what I thought was constipation for a few weeks now, but it is being acompanied by numerous pains in my body and i hate it! I don't really know...

I have had what I thought was constipation for a few weeks now, but it is being ...

RyanDreed

•7 years ago

2 Replies

Feet- problems return

For those of you who know me I am sure you remember the time i had with my feet . The flesh just rotting away and no one could figure why . It too k over a...

For those of you who know me I am sure you remember the time i had with my feet...

jetjetjet

•7 years ago

16 Replies

Bladder weakness

Is there anyone else having bladder problems? I have a complete bladder weakness been back to the doctors and they don't help. Anything else I can do? Tena...

Is there anyone else having bladder problems? I have a complete bladder weakness...

KarenOR

•7 years ago

26 Replies

I.n.r 7.1

For the first time since taking warfarin my I.n.r peaked at 7.1 from the finger and 6.8 venous . I feel very drained no signs of bleeding just tired headache...

For the first time since taking warfarin my I.n.r peaked at 7.1 from the finger ...

Bulldurham62

•7 years ago

5 Replies

inr 10.6

my warfarin was at 5mg i was seeing a sketchy primary so i found another but before i did the first one raised my dose. did a blood test three days after i...

my warfarin was at 5mg i was seeing a sketchy primary so i found another but bef...

eudhdjfhsjxbh

•7 years ago

7 Replies

positive then negative now waiting for testing

I managed to get hold of some old blood tests, 2014 lupus anticoagulant not detected, 2015 both the cardiolipin antibodies were negative too. But back in 2001...

I managed to get hold of some old blood tests, 2014 lupus anticoagulant not dete...

nuddle

•7 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for August 2017

Bruising

Just not feeling well, Hughes syndrome?

Headaches & Migranes 😔

chest swelling

Could I have APS

Serena Williams has a life threatening condition

Misdiagnosed with MS - lesions but no clots

Clexane injections newly diagnosed blood clot

APS

Meet and greet..

getting random mails about posts that i did not write or reply to.

Subcutaneous injecting sites

INR 2.5 -3.5

DOAC anticoagulants

Hey

Rosacea, cracking teeth, and tingling feet! :-/

Update-Chemo/Radiation on Lovonox

Balance issues

GOOD NEWS for a change

Generic Plaquenil

First time posting.........

Plaquenil and pregnancy

APS- Genetic?

new here....

Guys I am getting beyond scared!

Feet- problems return

Bladder weakness

I.n.r 7.1

inr 10.6

positive then negative now waiting for testing

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