GOOD NEWS for a change: Hello. I now... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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GOOD NEWS for a change

snorkle272 profile image
9 Replies

Hello. I now have hope!!! For the past 18 months I had been falling, unexpectedly, at least once a week. No warning, no sensation, no dizziness - my legs just gave out on me. And of course I would get hurt. My psychologist suggested I see my chiroprator who had helped with the vertigo I went through 2 years ago. I went and saw him, had xrays done the same day and went back to see him 5 days later for the results. I had broken my tailbone twice over the years, and reinjured it again recently. The lower 5 vertebrae were compressed, and moving a certain way, the compressions would interfer with the nerves nearby. That is why I was falling! Since the first treatment 5 weeks ago, I have not fallen once. NOT ONCE!!!! I do the easy exercises and see him weekly. Yeah! Hip hip hurrah!! At physio where they are working on partial tears relating to my left shoulder it had been suggested that I be fitted for a cane and a walker. I was deeply depressed with both these ideas as you can imagine. Neither would go very well with me getting in the water in the Caribbean to snorkle! :) But now I have hope again of leading the life I want to. I am a 60 yr.old woman who had just started exploring the world. There is HOPE out there. You just need to find the right person.

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9 Replies
HollyHeski profile image
HollyHeskiAdministrator

Well done you for your hard work-keep it up, the warm water becons...

Thanks for good news... x

Wittycjt profile image
Wittycjt

Yay! Nice to hear some good news here! Good for you. You will be snorkeling again before you know it!!!

MaryF profile image
MaryFAdministrator

Thanks for letting us know, it sounds like you have a nice adventure ahead! MaryF

Ozchick profile image
Ozchick

Great news-and the holiday sounds pretty good as well!

daisyd profile image
daisyd

Hi really please things are going so well for you I walk with a stick sometimes really good when walking on uneven ground, also people tend to give you more space.

I love snorkeling too, enjoy

Lure2 profile image
Lure2

Hi, I am very glad to hear that they have found the cause!

Sometimes we also fall from bad bloodsupply to the brain caused by HS/APS. I hope you will not stop anticoagualtion now.

Best wishes from Kerstin in Stockholm

snorkle272 profile image
snorkle272 in reply toLure2

No I am not stopping my anti coagulant. I would like to prevent or put off any more strokes!! Thanks for your concern Kerstin.

GinaD profile image
GinaD

Great news! Thanks for sharing!

KellyInTexas profile image
KellyInTexasAdministrator

🏝🐠

Say hello to Nemo for me when you find him!

( great story! Both your's and Disney's!)

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