Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,402 members•10,612 posts

All posts for June 2017

Another resource

APS Textbook "Current Research Highlights & Clinical Insights” based on @APS2016 Sessions/Discussions http://www.springer.com/us/book/9783319554402

APS Textbook "Current Research Highlights & Clinical Insights” based on @APS2016...

a_schaider

•7 years ago

8 Replies

Migraine Update

It's going on day 5-7 days of this migraine! Went to my friend and Cardiologist whom I use to work with at the heart hospital! I'm having somatic issues now...

It's going on day 5-7 days of this migraine! Went to my friend and Cardiologist ...

Debbweb01

•7 years ago

11 Replies

I will be around a little less for a short while!

I leave tomorrow to set up at Glastonbury Festival, I have worked there on and off for years, phone reception can be awful, so presence on here will be a...

I leave tomorrow to set up at Glastonbury Festival, I have worked there on and o...

MaryF

Administrator•7 years ago

16 Replies

Want to take advantage of all our features? Just log in!

Hi everyone I just wondering if anyone in my area has been diagnosed with APS.

Hi, my name is Stephanie L., though I go by Soul Rebel on line. I live in Roswell, NM. I was just wondering if there is anyone else in my area that has APS and...

Hi, my name is Stephanie L., though I go by Soul Rebel on line. I live in Roswel...

SoulRebel-APS

•7 years ago

22 Replies

Fluid on lungs

Hi all Following urgent X-ray on Monday, I received a call today to attend A&E urgently due to a shadow on my lung. I was petrified that I was physically...

Hi all Following urgent X-ray on Monday, I received a call today to attend A&E...

LSurtees

•7 years ago

30 Replies

Fractured spine

Hi I've been in hospital for 10 days after I fractured my spine in a fall I'm home now thankfully though in a brace for 12 weeks. When I asked the doctor...

Hi I've been in hospital for 10 days after I fractured my spine in a fall I'm ho...

margaretjo

•7 years ago

7 Replies

Required permissions

I tried to post some thing but was told I didn't have the required permissions. What is this and how do I go about getting them thanks

I tried to post some thing but was told I didn't have the required permissions. ...

margaretjo

•7 years ago

2 Replies

It starting to feel real

Following on from my last post where i announced i was pregnant and that i was feeling anxious, I am now starting to feel pregnant, feel relaxed and its all...

Following on from my last post where i announced i was pregnant and that i was f...

My4angels

•7 years ago

9 Replies

Bleeding gums.

Hi All, Does anyone else suffer from bleeding gums on warafarin? Thanks,

AngieF

•7 years ago

6 Replies

Help needed

Hello I have a 13yr old daughter has been suffering migraines since she was 5. It has been a long long battle of lots of hospital admissions and consultations...

Hello I have a 13yr old daughter has been suffering migraines since she was 5. I...

Onamiss

•7 years ago

14 Replies

Took meds I remember doc/Neurologist told me years ago

Hi i kinda recalled what Neurologist told me to do when I had mini stroke years ago in my 20's!, he told me to take Valium when I got home had cat scan! This...

Hi i kinda recalled what Neurologist told me to do when I had mini stroke years ...

Debbweb01

•7 years ago

2 Replies

Migraines Back & Calf pain

Hi I've had a migraine for 2 days now and calf pain! I'm very confused and the memory is failing! I'm back on strict regiment with my shots, but maybe I did...

Hi I've had a migraine for 2 days now and calf pain! I'm very confused and the m...

Debbweb01

•7 years ago

6 Replies

Fertility treatment and APS

Hi, does anyone know the effects of fertility drugs and APS? We're thinking of trying for another baby. I have PCOS as well and am mostly anovulatory. We did...

Hi, does anyone know the effects of fertility drugs and APS? We're thinking of t...

Saralmac

•7 years ago

2 early miscarriages, sub-chorionic haemorrhage, lifelong migraine, but negative test result

Hello all! First posting today, wondered if any of you had any thoughts. My brief history: migraines 'diagnosed' in childhood, no other symptoms until TTC,...

Hello all! First posting today, wondered if any of you had any thoughts. My bri...

Rigamorph

•7 years ago

10 Replies

Heparin whilst ttc?

Hi, I'm new to the group :) I have two healthy sons aged 6 and 4 (born pre diagnosis and with no issues). Last October, I tragically lost my daughter during...

Hi, I'm new to the group :) I have two healthy sons aged 6 and 4 (born pre diag...

Glittersparkles

•7 years ago

5 Replies

No relief for Mouth Ulcers!

Hi I'm on Lovenox shots now instead of Warfarin! I've been so busy taking care of sick hubby with cancer and handicapped son , sometimes I forget my shot! I'm...

Hi I'm on Lovenox shots now instead of Warfarin! I've been so busy taking care o...

Debbweb01

•7 years ago

Period

Well my periods are quite bad and the last one was 3 weeks which finished about 10 days ago I've just got out of the bath and boom back bleeding again 😢 this...

Well my periods are quite bad and the last one was 3 weeks which finished about ...

rayl

•7 years ago

9 Replies

Nausea

Does anybody else get awful nausea when INR up or down . My IMR very unstable at the moment don't know why doing nothing different . Monday it was 3.5 today...

Does anybody else get awful nausea when INR up or down . My IMR very unstable at...

amy1808

•7 years ago

21 Replies

Australia- Brisbane specialist?

Hi ive just moved to Australia (brisbane) and was originally under Prof Khamashta at London uk. I found Prof K to be fantastic but he went on sabbatical and i...

Hi ive just moved to Australia (brisbane) and was originally under Prof Khamasht...

jp83

•7 years ago

3 Replies

Is breastfeeding safe with APS?

Hi all, Not sure if it's a silly question but it is safe to breastfeed if you have APS? Since one of the main benefits of breastfeeding is passing on mothers...

Hi all, Not sure if it's a silly question but it is safe to breastfeed if you ha...

Oliversmum

•7 years ago

7 Replies

Anxious

Done a pregnancy test today and it was positive! It's taken us a year to conceive and a year since my last miscarriage. Was diagnosed with APS last month. I'm...

Done a pregnancy test today and it was positive! It's taken us a year to conceiv...

My4angels

•7 years ago

19 Replies

Very new to this...

Hi, after a recent brain MRI for lots of symptoms of unsteadiness and aches and pains here and there i have 13 lesions on show. My brother and father have the...

Hi, after a recent brain MRI for lots of symptoms of unsteadiness and aches and ...

Louise1234

•7 years ago

17 Replies

Lost, exhausted and stressed

I'm a wife of a 33 year old man who suffered PE in both his lung in mid October 2016. After 2 nights in the hospital he was sent home with a RX for Xarelto....

I'm a wife of a 33 year old man who suffered PE in both his lung in mid October ...

weebitfluffy

•7 years ago

5 Replies

Pre eclampsia and aps

Hi there I am new here, I lost my son last february from pre eclampsia at 27w. Unfortunately they did multiple blood tests and I am positive for anti...

Hi there I am new here, I lost my son last february from pre eclampsia at 27w. U...

Theomom

•7 years ago

12 Replies

negative APS blood tests

Hi Ive now had results for all three APS blood tests and they were all negative. My IFA ANA was also negative. I know that there is sero negative APS but Im...

Hi Ive now had results for all three APS blood tests and they were all negative....

charlieab

•7 years ago

13 Replies

Cranial nerve blocks ( steroids injections) causing an elevated INR?

1. Just out of hospital last week for a major DVT ( arm) with low INR ( 1.9, 2.2 , etc) with accompanying migraines 2. Migraines are suspected Hemi crania...

1. Just out of hospital last week for a major DVT ( arm) with low INR ( 1.9, 2.2...

KellyInTexas

Administrator•7 years ago

10 Replies

Anyone take Acyclovir for Mouth ulcers???

I'm at that point where my tooth was pulled over 6 weeks ago and still with mouth sores and although I have Sjogrens I'm in constant pain! Of course after 5...

I'm at that point where my tooth was pulled over 6 weeks ago and still with mout...

Debbweb01

•7 years ago

19 Replies

New to APS and worried

Hi all I am new to this group but have been on lupus uk for a couple of months as I was diagnosed with SLE, arthritis, alopecia, Malar rash, back in Nov 16. I...

Hi all I am new to this group but have been on lupus uk for a couple of months a...

LSurtees

•7 years ago

20 Replies

APS, feeling fatigued? Help!

Hi everyone! Just joined this forum a week ago :) anyways lost story short, I was diagnosed with APS in the end of march/early april. Ever since then, I have...

Hi everyone! Just joined this forum a week ago :) anyways lost story short, I wa...

apug1795

•7 years ago

18 Replies

Mouth Ulcers still her

Hi I have my mouth ulcers still! Burning tongue subsided, but God forbid I shud eat spaghetti sauce or anything acidic!!! Getting off APS, I just want to send...

Hi I have my mouth ulcers still! Burning tongue subsided, but God forbid I shud ...

Debbweb01

•7 years ago

21 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2017

Another resource

Migraine Update

I will be around a little less for a short while!

Hi everyone I just wondering if anyone in my area has been diagnosed with APS.

Fluid on lungs

Fractured spine

Required permissions

It starting to feel real

Bleeding gums.

Help needed

Took meds I remember doc/Neurologist told me years ago

Migraines Back & Calf pain

Fertility treatment and APS

2 early miscarriages, sub-chorionic haemorrhage, lifelong migraine, but negative test result

Heparin whilst ttc?

No relief for Mouth Ulcers!

Period

Nausea

Australia- Brisbane specialist?

Is breastfeeding safe with APS?

Anxious

Very new to this...

Lost, exhausted and stressed

Pre eclampsia and aps

negative APS blood tests

Cranial nerve blocks ( steroids injections) causing an elevated INR?

Anyone take Acyclovir for Mouth ulcers???

New to APS and worried

APS, feeling fatigued? Help!

Mouth Ulcers still her

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