Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,378 members • 10,571 posts

All posts for March 2017

Travel Insurance for APS?

Hi, I have APS and need to travel for work. Can anyone recommend providers for travel insurance for worldwide cover? Many thanks.

Hi, I have APS and need to travel for work. Can anyone recommend providers for ...

•7 years ago

Blood thinner & weight loss challenges

I'm 47 year old female on warfarin indefinitely because of DVT and PE. I'm finding challenges losing weight and because of the medication, I have to eat...

I'm 47 year old female on warfarin indefinitely because of DVT and PE. I'm findi...

•7 years ago

Question regarding thyroid testing

Like many of you with APS I am low in vitamin D3 and Vitamin B-12 as well as homocysteine. I am also suspicious of thyroid deficiency and am going to ask my...

Like many of you with APS I am low in vitamin D3 and Vitamin B-12 as well as hom...

•7 years ago

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Not doing so well

Having been to ER 6 was ago who had never heard of APAS been to GP sent for test spleen enlarged kidney stones gallbladder stoner fatty liver feel so poorly...

Having been to ER 6 was ago who had never heard of APAS been to GP sent for test...

•7 years ago

INR and Dilantin interactions

I'm a 60 yr. old male w/Antiphospholipid Syndrome and Epilepsy. For the Epilepsy I take Dilantin. The Dilantin has caused and is causing great problems with my...

I'm a 60 yr. old male w/Antiphospholipid Syndrome and Epilepsy. For the Epilepsy...

•7 years ago

Obstetric APS - are blood thinners really necessary if no pregnancy is planned?

Following on from my earlier post about how clopidogrel and now hydroxychloroquine effect my digestive system so badly, I was wondering, is it really necessary...

Following on from my earlier post about how clopidogrel and now hydroxychloroqui...

•7 years ago

Hydroxychloroquine and stomach problems

Hi all. I have obstetric APS (miscarriages, no other clotting incidents), coeliacs, hashimotos, and undifferentiated connective tissue disease. I was on...

Hi all. I have obstetric APS (miscarriages, no other clotting incidents), coelia...

•7 years ago

New diagnoses

Hi Well we're do u start iam 37 what a year it's been.I was addmited to hospital with supected stroke last Feb it's taken a year of MRI bloods to find out I...

Hi Well we're do u start iam 37 what a year it's been.I was addmited to hospital...

•7 years ago

Is Fibro Real ?

Like many others with the various autoimmune diseases including Hughes; I was diagnosed with Fibromyalgia many years ago. As autoimmune diseases are Syndromes;...

Like many others with the various autoimmune diseases including Hughes; I was di...

•7 years ago

Diagnose with the Big 3 - Hughes/Lupus/Sjögren's What now?

I was diagnosed by Prof Hughes and Dr Lanham at London Bridge Lupus Clinic Last Monday with Hughes/Lupus/Sjögren's running alongside Hashimotos I am in a very...

I was diagnosed by Prof Hughes and Dr Lanham at London Bridge Lupus Clinic Last ...

•7 years ago

it's all so confusing!

Hi there. Newbie here! I am trying to be my own advocate here and wanted to ask a question to those who are more familiar with this stuff. So. In 2014 I was...

Hi there. Newbie here! I am trying to be my own advocate here and wanted to ask...

•7 years ago

Has anyone had a stroke and then really and truly believed something occurred in your life, then found out it didnt

I ve just realized this has happened to me twice now it is scary. Now I am worried that other things I thought were true aren't? But how do I know until...

I ve just realized this has happened to me twice now it is scary. Now I am worri...

•7 years ago

Aps specialist

How do I get an appointment with an apps specialist. Was diagnosed in May 2015 and was prescribed warfarin with inr range of 2-3. Still feel unwell and really...

How do I get an appointment with an apps specialist. Was diagnosed in May 2015 a...

•7 years ago

? Written guidelines anywhere for Hughes/APS, may be then other drs would stop trying to re-invent an already invented " Hughes tx wheel"👀

Anything published/written by Professor Hughes as specific guidelines/treatments that can be printed out and given to physicians? This could stop our own...

Anything published/written by Professor Hughes as specific guidelines/treatments...

•7 years ago

WHY HAVE I GOT SO MUCH MUSCLE AND JOINT PAIN !!!!!!!!!!!!!

Gd morning , its been sometime from my last post ,but i thought id wait and see how things would go , ive been of the fragmin injections 2 days now and on...

Gd morning , its been sometime from my last post ,but i thought id wait and see ...

•7 years ago

Check your labs-third post

Well, now I am confused. Have had hypothyroid symptoms for years. March 1, 2017, discovered my TSH was elevated 2 years ago but this fact was missed by doctor....

Well, now I am confused. Have had hypothyroid symptoms for years. March 1, 2017,...

•7 years ago

Curious: did any one receive TPA(clot buster) when having diagnosis of APS and having a stroke?

If you did what was your outcome and if you were to have another stroke could you receive it again? Always curious and trying to learn, thanks. Cindy in NJ

If you did what was your outcome and if you were to have another stroke could yo...

•7 years ago

This looks promising!

Please see this report of more research into Hughes. http://www.cambridge-news.co.uk/business/life-sciences/35m-help-abzena-cut-heart-12680490

Please see this report of more research into Hughes. http://www.cambridge-news.c...

•7 years ago

Beau Lines

Hi, I am told by my MD that I am a complex case so they would not be surprised what turned up. I have recently (3 months)developed beau lines on my fingers and...

Hi, I am told by my MD that I am a complex case so they would not be surprised w...

•7 years ago

Fed up!

Well after being pleased that I was finally getting the tests I need the nurse has phoned again today to say they won't be doing any blood tests until I'm off...

Well after being pleased that I was finally getting the tests I need the nurse h...

•7 years ago

Check your labs-second post

Oops, forgot to ask: how long does it take to feel better once you start thyroxine? Days? Weeks? Months? Thanks again, Nancy

Oops, forgot to ask: how long does it take to feel better once you start thyroxi...

•7 years ago

Check your labs

I found out yesterday that my TSH has been abnormal since May of 2015. At that time I felt awful and begged my doctor to test anything he could. I never heard...

I found out yesterday that my TSH has been abnormal since May of 2015. At that t...

•7 years ago

Be the first to reply

Second post:Anyone on lovenox(enoxaparin) in USA for taking long term instead of warfarin?

What information was needed for insurance purpose?to be on it for long term instead of warfarin? Thanks, Cindy in NJ

What information was needed for insurance purpose?to be on it for long term inst...

•7 years ago

Dry mouth and fatigue when pregnant

Hi all, I am currently 19 weeks 3 days pregnant with aps, currently on aspirin only. My question is has anyone else experienced a really dry mouth and bad...

Hi all, I am currently 19 weeks 3 days pregnant with aps, currently on aspirin o...

•7 years ago

Very odd

Well After my last post I got a call from the hospital saying the doctor has looked at my bloods & wants me to do all three tests for sticky blood! I told her...

Well After my last post I got a call from the hospital saying the doctor has loo...

•7 years ago

LDN

Hi does anyone take LDN,Iv just ordered a private px and wondering if anyone has had positive results Thank you Dawn x

Hi does anyone take LDN,Iv just ordered a private px and wondering if anyone has...

•7 years ago

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