Curious: did any one receive TPA(clo... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Curious: did any one receive TPA(clot buster) when having diagnosis of APS and having a stroke?

Wittycjt profile image
5 Replies

If you did what was your outcome and if you were to have another stroke could you receive it again? Always curious and trying to learn, thanks. Cindy in NJ

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Wittycjt
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Tim_Thorpe profile image
Tim_Thorpe

I had a major stroke in 2011 and was thrombolised (TPA ) and made a miracles recovery 😄 You can't have (TPA) for three months as the risk of heamoridge

Is to great ! They didn't discover I had APS syndrome until well after 4 months of my stroke !!!

Because I was having Tia's

Amourus fugax so I was lucky I didn't have another full blown stoke in the 3 months after my first one as there wouldn't of been any thing they could of done fore me 😐

Michielson profile image
Michielson

I have had TPA more than once. It is a miracle drug!

I waited too long to seek medical help for my first stroke, so they did not feel that they could administer TPA safely. Because of that, I still have issues with numbness, etc. During subsequent strokes, it was administered with major success. I was not diagnosed with APS until months after my fourth hospitalization.

Wittycjt profile image
Wittycjt in reply to Michielson

Did the numbness from the first stroke go away? Thanks

Michielson profile image
Michielson in reply to Wittycjt

No. At the two year mark, my team of specialists were blunt with me and told me that it is permanent. I was diagnosed with hemiplegia and hemiparesis...

Wittycjt profile image
Wittycjt

Well that just sucks☹️

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