Beau Lines: Hi, I am told by my MD that... - Hughes Syndrome A...

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Beau Lines

LesJames profile image
16 Replies

Hi, I am told by my MD that I am a complex case so they would not be surprised what turned up. I have recently (3 months)developed beau lines on my fingers and thumbs. These are line that go horizontal on your nail and look like indentations. They are a little painful when you press on the indent. My Nails are also crumbling. I have Hughes, Arthritis, Sjogrens, Temporal Arteritis, Glaucoma amongst other things.

Has anyone else got these lines and if so what treatment or comments were said about them? TIA

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LesJames profile image
LesJames
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16 Replies
HollyHeski profile image
HollyHeskiAdministrator

Hi, I have APS & SS, I have them only on my thumb nails, mentioned them to liver specialist - he made no real comment!! Ive just ignored them with no treatment.

My friend who has thyroid problems has them severly with crumbling as well, she was told this was due to her desease.

Perhaps get your thyroid checked? Goes along side Hughes, SS etc.

MaryF profile image
MaryFAdministrator

Hi, I had these when pregnant with my daughter, I was particularly ill when I had them, they went away after that. MaryF

LesJames profile image
LesJames

The other things going on are: Aching joints, Husky voice, Difficulty swallowing, Plantar foot. fatigue, other skin blemishes, one of which has a biopsy taken and I am waiting for the results.

LesJames profile image
LesJames

I am to have blood tests tomorrow for thyroid. Is there any that I should check for?

TIA

LesJames profile image
LesJames

Thank you for your prompt reply x

Wittycjt profile image
Wittycjt

So? Blood results Les?

LesJames profile image
LesJames in reply toWittycjt

Sorry please remind me

LesJames profile image
LesJames

Thanks, I ended up paying for my own tests, which came back as normal. Surprise surprise! At the moment I have numbness in both feet. The beau lines are still there and the nails is dying in parts. Both of my eyes have blown, Uveitis. I am down to 11mg of steroids as I go lower the more joint pain I get. Anyway thanks for your comments they are comforting, knowing that I am not alone helps.

LesJames profile image
LesJames

How can I send you the results of my last test? they are in pdf form?

LesJames profile image
LesJames

Here is a link to my last bloods. 1drv.ms/w/s!Ao1lZY9KXrLpiFi...

LesJames profile image
LesJames

Thank you, I will let you know how things progress. Incidentally my son has B12 injections for Crohn's.

LesJames profile image
LesJames

No, she isn't. I spoke with her this morning and immediately went on the defensive and said the last bloods I had were fine. It transpired that the bloods taken for suspect thyroid, did not include B12 or Ferritin. She has agreed to have my bloods submitted again as part of my monthly methotrexate monitoring. Is it possible to have B12 injections privately? Just a thought. Just found out my 6 monthly check with my rheumatologist has been put off until at least September. All this frustration just adds to my situation. Starting to regret moving to Wales.

Sorry for rambling.

Thanks

Wittycjt profile image
Wittycjt

B12

LesJames profile image
LesJames in reply toWittycjt

I had my bloods tested by a private lab and its shows my B12 is very low and ferritin is also low too. I am now having them done by my GP to confirm them.

LesJames profile image
LesJames in reply toLesJames

Following advice given to me I have tried a B12 spray which has had a marked improvement. My main battle now is to get my Doctor to agree and give me the injections.

LesJames profile image
LesJames in reply toWittycjt

Hi, Yes my Blood showed an extremely low B12 and Ferritin. I am now taking under my own steam a B12 boost spray, which I got from Amazon.

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