Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for March 2017

Iron levels

Hi All, does anyone know if there is a link with low iron to APS or is it long term warfrin use. Husbands iron levels have suddenly dropped only after being...

Hi All, does anyone know if there is a link with low iron to APS or is it long t...

Vespa1

•7 years ago

2 Replies

Heart involvement in the Antiphospholid syndrome

Check it out on google- American Heart Assoc Journal

Wittycjt

•7 years ago

2 Replies

American Brands of Plaquinil/ Adverse side effects/ Having trouble tolerating

I know Mary F is guru level on this subject- I took her pip and manufacture info to pharmacist and we are having trouble with translation. We can't get the...

I know Mary F is guru level on this subject- I took her pip and manufacture info...

KellyInTexas

Administrator•7 years ago

21 Replies

Want to take advantage of all our features? Just log in!

Just for fun, not planning to move there yet!

http://www.dailymail.co.uk/sciencetech/article-4324332/Amazon-tribe-healthiest-arteries-studied.html MaryF

http://www.dailymail.co.uk/sciencetech/article-4324332/Amazon-tribe-healthiest-a...

MaryF

Administrator•7 years ago

5 Replies

Newly told I have this disease to add to all my other issues

I have followed everything I have been told to do to keep my inr levels normal and I can't seem to stay therapeutic 2 weeks in a row. I have now been...

I have followed everything I have been told to do to keep my inr levels normal a...

Janetorlando9311

•7 years ago

7 Replies

Long term possible side effects from taking Warfarin

Hi,I have been taking Warfarin for twelve years to control my APS. A recent unusual small rash is being investigated but has made me wonder if you can become...

Hi,I have been taking Warfarin for twelve years to control my APS. A recent unus...

jagessar

•7 years ago

8 Replies

Heart problems and APS

I never thought much about how Sticky Blood can affect the heart. Without a family history of heart disease I expected to be free of major heart problems...

I never thought much about how Sticky Blood can affect the heart. Without a fami...

orygun66

•7 years ago

26 Replies

An interesting paper pinched from TUK's forum

A thyroid/vascular connection https://www.ncbi.nlm.nih.gov/pubmed/28298012 MaryF

A thyroid/vascular connection https://www.ncbi.nlm.nih.gov/pubmed/28298012 M...

MaryF

Administrator•7 years ago

2 Replies

Physio deep tissue massage

Hi all, I've been suffering for some months with sciatica (prolapsed disc) and have recently started Physio (paid privately) So far it has been great but...

Hi all, I've been suffering for some months with sciatica (prolapsed disc) and h...

Tinythepanda

•7 years ago

4 Replies

Aps and mild lupus

Been on hydrocloxaquine for 2 to 3 yrs now due to extremely painful cramp like pains all over my body . Just recently been but on to aziophrine in June...

Been on hydrocloxaquine for 2 to 3 yrs now due to extremely painful cramp like p...

Tim_Thorpe

•7 years ago

5 Replies

Hashimotos disease

Hi All, has anyone heard of the above? Having been dismissed by GP last week he did blood tests because my spleen enlarged again and told have this which is...

Hi All, has anyone heard of the above? Having been dismissed by GP last week he...

SueH21

•7 years ago

4 Replies

Coumadin for AFIB

I am new here. 72 year old female and have been taking Coumadin for 3 years due to AFIB. Also have type 2 diabetics. Trying to eat healthy but difficult to...

I am new here. 72 year old female and have been taking Coumadin for 3 years du...

3dogmom

•7 years ago

2 Replies

Good news for a change

Am making appointment with endocrinologist. Good news- my daughter has won Fulbright Scholarship to study laws in India that affect nonprofit agencies devoted...

Am making appointment with endocrinologist. Good news- my daughter has won Fulb...

ndstephens49

•7 years ago

1 Reply

Are you over sensitive ?

This may be a strange question: When I'm feeling ill I can't tolerate noise and light. It's as though I'm being over stimulated. Going out is hard sometimes...

This may be a strange question: When I'm feeling ill I can't tolerate noise and ...

WendyWoo50

•7 years ago

16 Replies

New Name Same Person

Hi it's me. For some reason they made me resign up and my username not available! Of course it's not cuz it's taken by me lol... Just so you know I chose the...

Hi it's me. For some reason they made me resign up and my username not availabl...

Dubessos

•7 years ago

3 Replies

APS target according to Dr Hughes

My new doc doesn't know APS after all. He has resisting allowing my INR to rise from it's current 2.5. It spiked to 3.3 this week ( I feel better) and he...

My new doc doesn't know APS after all. He has resisting allowing my INR to rise ...

DannyBoy1

•7 years ago

16 Replies

At a loss

I had a brilliant weekend best I've felt for ages. Then today I felt awful. Exhausted and hurt everywhere. I have hardly been able to walk for the pain in my...

I had a brilliant weekend best I've felt for ages. Then today I felt awful. Exha...

WendyWoo50

•7 years ago

14 Replies

Check your labs-fourth post

Got lab results. Only current abnormal result on thyroid panel is thyroglobulin antibody-result is 2.4 IU /ml (normal 0.0-0.9). TSH, thyroid peroxidase, T3, T4...

Got lab results. Only current abnormal result on thyroid panel is thyroglobulin ...

ndstephens49

•7 years ago

3 Replies

Aloha from Hawaii!

Yes, we see APS/ Hughes even here in paradise! Advantages: Year round exercise and plenty of community support, which we call the "aloha" spirit. Disadvantages...

Yes, we see APS/ Hughes even here in paradise! Advantages: Year round exercise a...

Kerlampert

•7 years ago

5 Replies

Anticoagulation Machine

Hi I'm having to go to self testing and I have to purchase or rent a machine this is due to my need for a high INR , could anybody help or give me some advice...

Hi I'm having to go to self testing and I have to purchase or rent a machine thi...

Sue63

•7 years ago

12 Replies

Heprin allergy

Hi I am on warfarin & took heparin when inr below 2.5. I developed a reaction to heparin , hives swollen lips & eyes & itchy mouth & throat. They changed it to...

Hi I am on warfarin & took heparin when inr below 2.5. I developed a reaction to...

Lind8

•7 years ago

4 Replies

👁👁👁👁Reminder to please update/do your profiles

It's a good way to tell us about yourself and where you are located🎉😊

Wittycjt

•7 years ago

2 Replies

Aziophrine

Any one else on aziophrine was recently up my dose from 100 mg daily to 125 mg daily due to my micro clots recently found on my brain 😐 Suffered a major...

Any one else on aziophrine was recently up my dose from 100 mg daily to 125 mg d...

Tim_Thorpe

•7 years ago

9 Replies

Issues with dental care?

Hey guys! I was diagnosed with APS in 2014 when a 10 inch blood clot was found in my left arm and had grown to the point that it was literally 3 inches from my...

Hey guys! I was diagnosed with APS in 2014 when a 10 inch blood clot was found i...

DanaL13

•7 years ago

8 Replies

Going round in circles

Hello all, thank you for your replies, had a bad few days. Been to my GP today with information regarding my local specialist, he told me "no need see...

Hello all, thank you for your replies, had a bad few days. Been to my GP today ...

SueH21

•7 years ago

9 Replies

Botox for on going migraines

Has anyone tried Botox injections for chronic migraines? I can not take migraine meds due to side effects so my Neuro wants to try the Botox injections. My...

Has anyone tried Botox injections for chronic migraines? I can not take migrain...

edgewater100

•7 years ago

19 Replies

Heart in VF?

Hi all. Can aps be a contributory factor to your heart going into VF? I had an episode on the weekend and admitted to hispital and I've now been put on beta...

Hi all. Can aps be a contributory factor to your heart going into VF? I had an e...

NeilNicholas01

•7 years ago

7 Replies

Help, anyone know of APS specialist in Mich?

Other new member needs one

Wittycjt

•7 years ago

3 Replies

Very unique APS situation.

I'm 23 years old and I was diagnosed with APS about 3 years ago. I had the testing done initially because my mother has it and I was looking into birth...

I'm 23 years old and I was diagnosed with APS about 3 years ago. I had the test...

Echo_Brielle

•7 years ago

13 Replies

Aching legs

Very aching legs the moment is this a sympton of aps.? Just had bloods done to see if I might have lupus, also rash on face like an alergic reation to...

Very aching legs the moment is this a sympton of aps.? Just had bloods done to s...

littlesinger1

•7 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2017

Iron levels

Heart involvement in the Antiphospholid syndrome

American Brands of Plaquinil/ Adverse side effects/ Having trouble tolerating

Just for fun, not planning to move there yet!

Newly told I have this disease to add to all my other issues

Long term possible side effects from taking Warfarin

Heart problems and APS

An interesting paper pinched from TUK's forum

Physio deep tissue massage

Aps and mild lupus

Hashimotos disease

Coumadin for AFIB

Good news for a change

Are you over sensitive ?

New Name Same Person

APS target according to Dr Hughes

At a loss

Check your labs-fourth post

Aloha from Hawaii!

Anticoagulation Machine

Heprin allergy

👁👁👁👁Reminder to please update/do your profiles

Aziophrine

Issues with dental care?

Going round in circles

Botox for on going migraines

Heart in VF?

Help, anyone know of APS specialist in Mich?

Very unique APS situation.

Aching legs

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive