LDN

[dawnie1]

Hi does anyone take LDN,Iv just ordered a private px and wondering if anyone has had positive results

Thank you Dawn x

[MaryF Administrator]

HI, yes I am on it, and I have had great results, I have a mix of disease including Lupus and Stevens Johnson Disease so I am intolerant to most things, so this combined with my other regimes has helped me. MaryF

[HollyHeski Administrator]

Hi, I started taking on private prescription (couldnt get via consultant or GP) last Sept. I have APS as well as sjogrens. I have had severe pain with dead arms and pins & needles, was only getting 2-3 hours sleep at night. I kept a daily pain score -was averaging between 7/9 out of 10. After taking LDN, this gradually reduced to 4/6 out of 10. More importantly getting 4/5 hours sleep!

[MaryF Administrator in reply to HollyHeski]

Out of interest did you check the other things I go on about, ie vitamin D, B12 Iron and Thyroid, all of mine was low, my thyroid function was very very slow and this can add to insomnia. I am much better now and my dose is 4.5 of LDN. MaryF

[HollyHeski Administrator in reply to MaryF]

Hi, yes all bloods were checked, I am under Prof Hunt and she is totally on the ball.

My pain has been going on for 2 years now - having done all the rounds with docs. I have stenosis of c5/6 of neck, right & left subclavian (right having a clot). Currently seeing and being tested for neurlogic thoraisic outlet syndrome!! Like everything diagnosis can help with understanding and coping. When I told the docters recently that I had put myself on LDN as I was desperate, they said thats good it helps some people!

I am currently on 4mls per day.

[MaryF Administrator in reply to HollyHeski]

Yes she is on the ball, and knows I am on it also. I feel great on LDN, very pleased with it. MaryF

[HollyHeski Administrator in reply to MaryF]

Thats good, I havnt seen her since starting it, so was worried about her reaction. It was something she wouldnt prescribe. I have total respect for her, probably wouldnt even be here without her support and undestanding. Glad LDN works for you, (I did read your comments on it before starting). xx

[MaryF Administrator in reply to HollyHeski]

It is not a drug they are allowed to prescribe, so like you I am on a private prescription. MaryF

[dawnie1]

Thank you so much for your replys , great to hear positive results, looking forward to starting, will let you know how I get on. X

[AnnNY]

i did try it some years ago and had some improvement in brain fog. Not so much help for pain.

I was wondering what dosage those of you who are taking it were on, if you don't mind answering.

[dawnie1 in reply to AnnNY]

I haven't started yet! Waiting for the px so I can't answer your question yet sorry, when I get it and I know I will let you know x

[AnnNY]

Thanks.