Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for July 2016

Looking for specialist on seronegative in scotland

Hi all. I am new to the group. Looking for help please. since my early 20s (im now 48) i've had symptoms of paralysis down right side (temp) balance issues,...

Hi all. I am new to the group. Looking for help please. since my early 20s (im n...

ladykate

•8 years ago

1 Reply

Good news about new oral anticoagulants in AF and venous thrombosis - (from HSF Facebook page)

NICE have just sent an alert with some good news about the NOACS - non-vitamin K anticoagulants such as rivaroxaban. A review has shown them to reduce the risk...

NICE have just sent an alert with some good news about the NOACS - non-vitamin K...

merrohawk83

•8 years ago

5 Replies

Ribs hurt and twitching

I get pain in my ribs which is due to ankylosing spondylitis (recently diagnosed) . It always feels just like a P. E. However I am on Xarelto and I've been...

I get pain in my ribs which is due to ankylosing spondylitis (recently diagnosed...

JenInCali

•8 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Self testing help.

I have purchased a self testing kit from one of our lovely members. My coagulation clinic and consultant think this is a fantastic idea. However, my GP is...

I have purchased a self testing kit from one of our lovely members. My coagulati...

Tinythepanda

•8 years ago

10 Replies

Hydroxy chlorine

Just been prescribed Hydroxy chlorine. I have APS ,RA+FIBROMYALGIA and take lots of medication Inc warfarin. Latest prescribed said would help with APS...

Just been prescribed Hydroxy chlorine. I have APS ,RA+FIBROMYALGIA and take lots...

Fra22-57

•8 years ago

13 Replies

Need advice on Future possible Surgery and the Hi Risk I'm told I am!

Hi All! I've been hiding lately from my illnesses, as I'm sick of docs, INR levels, RA, Sjogrens and the like... I seem to be putting my head in the sand!!! I...

Hi All! I've been hiding lately from my illnesses, as I'm sick of docs, INR leve...

Debbweb01

•8 years ago

6 Replies

Billary colic/ gall bladder attacks but no gall stones

i have had 7 gall bladder / billary colic attacks since March and 4 in the last two or three weeks , I am waiting to get seen by the general surgeon , when...

i have had 7 gall bladder / billary colic attacks since March and 4 in the last ...

Hidden

•8 years ago

4 Replies

New

Hi, just got diagnosed a couple weeks ago after 2 incidences of pulmonary embolism and positive lupus anticoagulant. I also have fibromyalgia and HLA B27...

Hi, just got diagnosed a couple weeks ago after 2 incidences of pulmonary embol...

JenInCali

•8 years ago

3 Replies

Complex Diagnostic Route Ends !

Hello again, my son-in-law has had months of seeing different "experts" since a sudden hearing loss/tinnitus which I posted here with many helpful replies. He...

Hello again, my son-in-law has had months of seeing different "experts" since a ...

teldee

•8 years ago

2 Replies

Flexiseq Gel. Is it safe for us to use?

I have been recommended by friends to try Flexiseq Gel to rub on skin for joint pain & swelling. But I notice that the first ingredient listed is...

I have been recommended by friends to try Flexiseq Gel to rub on skin for joint...

purple

•8 years ago

4 Replies

Apixoban??

I am about to start new medication Apixoban. Coming from riveroxaban and previously fragmin. Is anyone else on this medication? I am awaiting to see a...

I am about to start new medication Apixoban. Coming from riveroxaban and previou...

Kittybaker

•8 years ago

16 Replies

Rivao abandoned and tooth extraction

Hi guys had 2 teeth removed yesterday ...a very traumatic experience as one root had fused itself to my jaw bone and had to be drilled off . I'm taking...

Hi guys had 2 teeth removed yesterday ...a very traumatic experience as one root...

stargazer5761

•8 years ago

1 Reply

An interesting article fished off Social Media/Vitamin D

http://www.vitamindcouncil.org/blog/pilot-rct-discovers-vitamin-d-supplementation-may-enhance-the-efficacy-of-blood-thinners/ MaryF

http://www.vitamindcouncil.org/blog/pilot-rct-discovers-vitamin-d-supplementatio...

MaryF

Administrator•8 years ago

3 Replies

What to take for joint pain?

Is anyone on here taking short courses of Prednisolone to alleviate joint pain? It's Winter here and I really notice the difference in my joints and hand....

Is anyone on here taking short courses of Prednisolone to alleviate joint pain? ...

Ozchick

•8 years ago

13 Replies

A strange experience with my vision

The end of April I had a very strange experience, I was sitting on my couch visiting with someone and everything that was in my vision shifted quickly to the...

The end of April I had a very strange experience, I was sitting on my couch visi...

MarleneFlorrie

•8 years ago

12 Replies

Professor Graham Hughes Monthly Blog June 2016

Monthly Blog June Beating the Illness June has been a mixed month; some sunny days – lots of cold days, inches of rain. It looks as if Paris got even more...

Monthly Blog June Beating the Illness June has been a mixed month; some sunny ...

MaryF

Administrator•8 years ago

19 Replies

Advice please

I'm new to this blog, the reason why I looked up my blood disorders is that I am feeling lately extremely tired and my INR is being checked twice a week in the...

I'm new to this blog, the reason why I looked up my blood disorders is that I am...

Hedwig-68

•8 years ago

11 Replies

INR Finally STABELIZING & Need Info about VITAMIN B12

Hi Friends! It's been a while and I hope Y'all are doing well! A few weeks ago I finally STABELIZED on my Warrfarin numbers at 4.3. Just before I went away I...

Hi Friends! It's been a while and I hope Y'all are doing well! A few weeks ago I...

Debbweb01

•8 years ago

5 Replies

Lupus anti coagulant

What the difference between lupus anti coagulant and other anti coagulant

amy1808

•8 years ago

2 Replies

Hi here , male 63 with fibro and sticky Blood

Hi folks hope I'm on the right forum , I was diagnosed with fibro some 10:years ago, I have just been through hell and back with extreme Fatigue blurry eyes ,...

Hi folks hope I'm on the right forum , I was diagnosed with fibro some 10:years ...

Drew2u

•8 years ago

5 Replies

Desperate for medication suggestions during pregancy

Hi I lost my baby at 24 weeks recently although I had been on low dose aspirin last 3 years and took cleaner from day 1 of pregnancy. 60% of placenta was...

Hi I lost my baby at 24 weeks recently although I had been on low dose aspirin ...

Avydoo

•8 years ago

7 Replies

Hirudoid Cream & Warfarin (INR)

Hi Everyone - recently been prescribed Hirudoid Cream by GP for Superficial Thrombophlebitis. Has anyone used this cream in confunction with Warfarin and if so...

Hi Everyone - recently been prescribed Hirudoid Cream by GP for Superficial Thro...

JPMcGee75

•8 years ago

9 Replies

CYSTS

Is there any connection between cysts and lupus/APS . I have lupus/APS and see the team a Guys etc. I was diagnosed with a Bosnik Cyst type 2F in my right...

Is there any connection between cysts and lupus/APS . I have lupus/APS and see t...

teadonna

•8 years ago

4 Replies

Blood clot

Hi, new to this, so unsure if this is the correct place to post, so forgive me if its not. 4 weeks ago I awoke with cramp in my leg then the next few night...

Hi, new to this, so unsure if this is the correct place to post, so forgive me i...

Notparonoid

•8 years ago

11 Replies

Hughes and eye conditions

Hi does anyone else with Hughes syndrome have eye conditions? My eyes change every time I go to the opticians and I was warned that either the condition or...

Hi does anyone else with Hughes syndrome have eye conditions? My eyes change ev...

Jolevans

•8 years ago

14 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2016

Looking for specialist on seronegative in scotland

Good news about new oral anticoagulants in AF and venous thrombosis - (from HSF Facebook page)

Ribs hurt and twitching

Self testing help.

Hydroxy chlorine

Need advice on Future possible Surgery and the Hi Risk I'm told I am!

Billary colic/ gall bladder attacks but no gall stones

New

Complex Diagnostic Route Ends !

Flexiseq Gel. Is it safe for us to use?

Apixoban??

Rivao abandoned and tooth extraction

An interesting article fished off Social Media/Vitamin D

What to take for joint pain?

A strange experience with my vision

Professor Graham Hughes Monthly Blog June 2016

Advice please

INR Finally STABELIZING & Need Info about VITAMIN B12

Lupus anti coagulant

Hi here , male 63 with fibro and sticky Blood

Desperate for medication suggestions during pregancy

Hirudoid Cream & Warfarin (INR)

CYSTS

Blood clot

Hughes and eye conditions

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