Hydroxy chlorine

[Fra22-57]

Just been prescribed Hydroxy chlorine. I have APS ,RA+FIBROMYALGIA and take lots of medication Inc warfarin. Latest prescribed said would help with APS too.Anyone else on this new find beneficial

[Tinythepanda]

Hi there,

I've been taking hydroxy for 18 months. It has greatly improved my fatigue and also joint pain. it did take around 6 months for me to start feeling the benefits as it can take a while to build up In your system.

[Fra22-57 in reply to Tinythepanda]

Brilliant.thanks very much

[daisyd]

Yes really good for my balance I noticed the difference within one or two weeks that I was no longer falling or bumping into things, it has to be the hydroxychloroquine from Zentiva though as the others make me unwell, I still am very sleepy though

Hope it works for you too

[Fra22-57 in reply to daisyd]

Yes they are from Zentiva so hoping eventually it will replace the steroids or partlying. Am rattling with all the pills

[MaryF Administrator]

Hi there best of luck, I could not tolerate the medication, probably due to my mix of diseases, however my daughter has done well on this medication. MaryF

[Fra22-57 in reply to MaryF]

Thanks for replying Mary.sounds promising with your daughter doing well on it too

[justlymostly]

I was on hydroxy for four years but had to come off of it 4 months ago as my stomach could not tolerate it any longer. Although it did help my joints now that I have stopped it my brain feels like it has "woken up" and my stomach is much much better. When I started it my thyroid levels were too low, they have now been sorted, and I do wonder if it was not right for me from the beginning. I guess we all react differently, but I do hope it helps you.

[Fra22-57 in reply to justlymostly]

Ooo heck.only been taking it few days and feel dizzy n queasy in mornings.hope it improves. Thanks for your reply

[justlymostly in reply to Fra22-57]

The Rheumatologist did say that he had never heard of it affecting the stomach, my prob was diarrhoea, he halved the dose from 200 twice daily to once daily which improved things slightly. Not sure what dose you are on, perhaps build up gradually, check with your doctors first. Good luck.

[Fra22-57]

Three a week! I am prescribed 2 a day!

[Lure2]

I have forgotten. Do you have an APS-Specialist now? Has he told you to take so many to start with?

Kerstin

[Fra22-57 in reply to Lure2]

Yes he prescribed 2 a day. Consultant is rheumatologist who sees me for RA Fibromyalgia and APS

[Fra22-57]

Ooo was just told to start 2 a day straightway.Hope doesn't effect retina of eyes as can only see out of one eye with contacts in properly. But I do have yearly eye checks.It's more tablets to make us rattle...lol