Hello again, my son-in-law has had months of seeing different "experts" since a sudden hearing loss/tinnitus which I posted here with many helpful replies.
He began with a doctor he saw at The Portland Hospital who was very good and he started him on aspirin and referred him to a private haematologist for further tests.
She did a number of blood tests, diagnosed APS and put him on daily Fragmin injections while he waited for an NHS appointment with Professor Karen Breen.
He saw her 3 weeks ago and was not put off by the manner in which she conducted the consultation (fired questions at him whilst looking at her computer and typing) only stopping to look at him when she wanted to check his skin. He was told he had a rash which was a known sign of APS and he was to continue with Fragmin but she may change him to Warfarin later. More blood was taken and he was to return in 3 weeks.
He saw Karen Breen again this week and was told to stop everything straight away as his diagnosis was incorrect? He found this unbelievable to say the least.
My daughter is worried that everything was stopped so quickly. He felt unwell with an aching neck and migraine symptoms the next morning but seems ok at the moment.
None of this seems to make sense. They can't all be wrong can they, and is he still at risk of a clot? Especially as he has been told he has Factor V Leiden which is inherited from his mother's side.
Confusion all round.
How many of us have been bouncing around between specialists to get a firm diagnosis?
Lupus Anticoagulant Query- part 2
Maybe the hematologist thinks I'm crazy? Appointment did not go well.
Never-ending confusion! Positive and negative IGg blood results
