Apixoban??

[Kittybaker]

I am about to start new medication Apixoban. Coming from riveroxaban and previously fragmin.

Is anyone else on this medication? I am awaiting to see a specialist in a Blood diseases as still feeling tired/joint pain/ pins and needles. I am also on B12 injections for life as my body still doesn't retain it.

[MaryF Administrator]

I hope it all goes well for you, keep us posted. MaryF

[Tammylola2012]

I am LA positive and live in US. I am on apixaban (Eliquis) currently. I am clot free and do have occasional joint pain and aches. However not stopping me from daily activity. Risk of bleeding is less with apixaban vs. rivaroxaban. I like that I can eat what I want with apixaban. I loathed restrictions on first round of clots as I was on Coumadin/Warafin.I could not get regulated on Warafin.

I was on rivaroxaban before apixaban and suffered major aches and pains. It felt like I was 84 instead of 44. I would just cry in pain when I would finish a work day.

I wish you the best and hope the new med change works out for you. If you have any questions, just ask, I will be happy to help to the best of my ability.

[Kittybaker in reply to Tammylola2012]

Thank you The symptoms you describe sound exactly like mine. I wake up every morning with extreme pain and pins and needles. Blurred vision. Joint pain.

I have been referred to other specialists who have checked nerve damage/carpal tunnel. All tests came back clear. It has just been put down to Aps. I am hoping the new medication will alleviate the symptoms

[Tammylola2012 in reply to Kittybaker]

I hope you get better results with apixaban. It is hard to find new normal when you feel like you are stuck between a rock and a hard place. They need to find med that will thin our blood properly and try to lead a close to pain free life as possible from symptoms of this blood disorder. Let me know how you get along and I will, hopefully, be awaiting good news on your behalf. 😊

[jordanibanani]

I have an APS specialist here in Denver and her favorite combo is Apixaban with Plavix. I have tried the Apixaban twice and hemorrhaged both times. I am on Arixtra (once a day injection) and Plavix, Plaquenil, and IVIG. I've been on the IVIG for 3 months and I've had pretty decent success so far with my autonomic neuropathy. Also a decrease in migraines and shoulder pain. Still a work in progress, but I don't feel like death everyday, except right after IVIG. I had it yesterday and feel like I have the flu. Give me a couple more days and I'll be back to my "normal".

[tobiasm]

I've been on Eliquis and have been about a year with no issues . There are studies currently going on with apixiban and rivaroxiban that they are supposed to discuss findings of at the International Congress for Antiphosphilipid Antibodies in September

[EbonyJewel1224 in reply to tobiasm]

That's nice to know that some studies are atlast underway. It is not a good feeling to know that this class of drugs are acceptable choices for all other conditions in which Warfarin was once the drug of choice except APS. I take Warfarin complete with all of its warts including dietary issues, weekly testing and drug titration. I will tolerate these minor issues given the knowledge that currently it is the only drug currently tested approved for the treatment of APS. I was feeling bad that our choices are so limited especially in the face of what I perceived as a lack of urgency to increase our treatment choices.

[Wittycjt in reply to tobiasm]

Where can I find this study info? thanks🌸

[Wittycjt in reply to tobiasm]

Hee ha.. Can't wait👍🏻

[Kittybaker]

I have a very good specialist. My consultant is Dr Sarah Lewis at Neville Hall.

I have had a very shaky road with my Hughes. My body is allergic to warfarin so the first clot I developed, my INR range was correct and my blood thin but my clot carried on getting larger and in the end went from my knee to under my lung. I collapsed and was in intensive care for 11 days as they had to remove my clot. The damage caused by the clot left me having my left side stented as my veins were rather battered. I have always been on fragmin injections and for the past year riveroxaban. I suffer very badly though with pins and needles and pain so the new drug has just been prescribed to me, I had a few other side effects from riveroxaban so this new one is the next stage

[Kittybaker]

Thank you

[Wittycjt]

I understand it isn't released yet but would like info on how they are researching it..what they are doing to test it. Thanks

[Kittybaker]

Just an update. I suffered very bad side effects on Apixoban. Breathing difficulties, bleeding, complete loss of energy, 5 days later I went back to riveroxaban

[Wittycjt in reply to Kittybaker]

And now what's happening?

[Kittybaker in reply to Wittycjt]

Just staying on riveroxaban

[Wittycjt]

Good for you and how's that working out?