Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2016

Need prognosis

Hi there, I'm 52 and diagnosed with APS and recently and commenced on Warfarin ( 2.5-3.5 range expected), this is as a result of a stroke in May 2015. I am...

Hi there, I'm 52 and diagnosed with APS and recently and commenced on Warfarin (...

Tmal1987

•8 years ago

8 Replies

Depression

My memorie is getting worse what can i do

Jonn

•8 years ago

14 Replies

Should I push for a diagnosis of APS?

Hi all, hoping for some advice. Having been suffering for a few years now with various symptoms and not really getting to the bottom of them (despite...

Hi all, hoping for some advice. Having been suffering for a few years now with v...

mango20

•8 years ago

18 Replies

Want to take advantage of all our features? Just log in!

Colonoscopy

Had frightening visit to A+E last weekend after passing lots of blood.lots blood tests and examination and thought was piles.saw my own gp yesterday and he...

Had frightening visit to A+E last weekend after passing lots of blood.lots blood...

Fra22-57

•8 years ago

18 Replies

Throbbing pains

Since being diagnosed with Hughes syndrome I have noticed chronic throbbing pains in legs and arms! It's just awful and don't know what to take that may help....

Since being diagnosed with Hughes syndrome I have noticed chronic throbbing pain...

Lisamoule1985

•8 years ago

7 Replies

Thank you for this community

I just came on quickly to tell everyone thank you for all your replies to my last post, and for always being here for everyone. I am struggling badly with...

I just came on quickly to tell everyone thank you for all your replies to my las...

dar58

•8 years ago

4 Replies

Totally sick and confused

I haven't written for months,because I write something and it disappears. So this is the 5th attempt !!! I haven't written since I won my PIP Tribunal- Basicly...

I haven't written for months,because I write something and it disappears. So thi...

Totallysick

•8 years ago

4 Replies

CRPS/RSD--Headaches, Ocular migraines, back of head feels squeezed!

A year ago after an ankle injury that would not heal, I was diagnosed with RSD. I have many of the classic symptoms. Constant pain which I can describe as...

A year ago after an ankle injury that would not heal, I was diagnosed with RSD....

racemiami

•8 years ago

19 Replies

Black circles under eyes

Hello everyone. I haven't posted anything lately but I am on every day. Just wondering if anyone else has black circles under your eyes. I am only on a baby...

Hello everyone. I haven't posted anything lately but I am on every day. Just won...

Susanlouise

•8 years ago

7 Replies

Elated! A strange response!

Hiya everyone. I received a confirmed diagnosis for APS in December and my first reaction? Elation!! Over the last 30 years I have been told I may have lupus,...

Hiya everyone. I received a confirmed diagnosis for APS in December and my first...

Ageingfemale

•8 years ago

7 Replies

Surgery today

I am having shoulder surgery today. Wish me luck!

Fusch

•8 years ago

13 Replies

Upcoming surgery

Hey all, I've been laying low and trying to deal with some on going health issues like everyone else on here. I am now facing yet another pretty serious...

Hey all, I've been laying low and trying to deal with some on going health issue...

becca10

•8 years ago

21 Replies

INR Difficulties

Hi My INR was only 1.6 this week! It's been 4 months and doesn't seem to come up? Does that mean my blood is very thick or is there another reason! My doc sez...

Hi My INR was only 1.6 this week! It's been 4 months and doesn't seem to come up...

Debbweb01

•8 years ago

24 Replies

Worried about pregnancy and positive Lupus Anticoagulant

Hi all - I haven't posted for a while, but today I read a new article about a study that confirmed those of us with a positive Lupus Anticoagulant are more...

Hi all - I haven't posted for a while, but today I read a new article about a st...

merrohawk83

•8 years ago

5 Replies

Success At The Eye Doc & Maybe Plaquinil???

Hello Mary, Not so fab and all my MOST AWSOME CAMRADES! I must say Mary u and not so fab have a wonderful sense of humor! I'll start collecting too as a hobby...

Hello Mary, Not so fab and all my MOST AWSOME CAMRADES! I must say Mary u and no...

Debbweb01

•8 years ago

3 Replies

Feeling confused and/or a fraud

Hi Everyone I have been really sick since Dec 2014. Lots and lots of tests and Dr visits all last year, my GP sent me and all my test results to a...

Hi Everyone I have been really sick since Dec 2014. Lots and lots of tests and...

suntap

•8 years ago

4 Replies

My doctor dismissed Hughes Syndrome!

My doctor claims that he has never heard of Hughes Syndrome and that what I have only causes blood clots. He thinks my fatigue and pain are due to Chronic...

My doctor claims that he has never heard of Hughes Syndrome and that what I have...

Hidden

•8 years ago

9 Replies

High altitude and APS

Hey all. Just wanted some opinions/thoughts. I'm possibly taking a 6 hour road trip to Denver Colorado soon and I'm just wondering if I should be concerned...

Hey all. Just wanted some opinions/thoughts. I'm possibly taking a 6 hour road...

JessNY

•8 years ago

14 Replies

Subconjunctival hemorrhage

Has anyone else suffered from an eye hemorrhage? I'm still waiting on my APS testing but this happened to me with no vision problems, no pain and no reason a...

Has anyone else suffered from an eye hemorrhage? I'm still waiting on my APS te...

mclaurinkids

•8 years ago

4 Replies

Overwhelmed & Disgusted

Well I finally after 2 months made eye doc appt for testing of Sojerns! I'm having trouble swallowing again and hate that choking! Started to go on celiac...

Well I finally after 2 months made eye doc appt for testing of Sojerns! I'm havi...

Debbweb01

•8 years ago

10 Replies

Pea sized lump under skin from heparin injection?

Hi, I've been injecting heparin for about 3 months since I found out I was pregnant. I've been lucky enough to have very minimal bruising. However, last night...

Hi, I've been injecting heparin for about 3 months since I found out I was pregn...

Tlove

•8 years ago

19 Replies

Bad time of it.

I have had enough of it all, things keep going from bad to worse, fractured my metatarsal in my foot, then fractured my little finger. Need knee replacement my...

I have had enough of it all, things keep going from bad to worse, fractured my m...

teadonna

•8 years ago

4 Replies

Awaiting blood tests impatiently

Long story short, my sister, mother and aunt on my father's side ( I know weird huh) all have APS. I finally had my testing done on Friday (I'm in the US and...

Long story short, my sister, mother and aunt on my father's side ( I know weird ...

mclaurinkids

•8 years ago

13 Replies

Itching

Hi everyone I'm aware the itching is a common side effect of warfarin / Sinthrone but I'm wondering how everyone manages? I was initially medicated with...

Hi everyone I'm aware the itching is a common side effect of warfarin / Sinthr...

SheRidesAUnicorn

•8 years ago

7 Replies

Amorous fugax

How serious is amourous fugax when caused by sticky blood should I go to A&E if I get it ??

How serious is amourous fugax when caused by sticky blood should I go to A&E if ...

Tim_Thorpe

•8 years ago

5 Replies

INR targets

Hi all, purely out of interest mainly can anyone explain on what basis 'our' INR target and range is set please? Mine is 3.5 target (range 3-4), was lower...

Hi all, purely out of interest mainly can anyone explain on what basis 'our' INR...

lloydyuk

•8 years ago

26 Replies

I've now been told ok to stop Fragmin at 12 weeks pregnant due to second test being negative.... Nervous

Brief background: I have one 5 year old boy and one 2 year old boy-no problems getting pregnant with them. Then had 1 miscarriage at 10 weeks (stopped...

Brief background: I have one 5 year old boy and one 2 year old boy-no problems g...

Pregnantk

•8 years ago

14 Replies

Inr crashed why ?

My target Inr is 4 Was 4.7 but crashed down to 2.7 in 11 days why does this happen ?? Lucky my blood was 4.7 at the start if it had been on the lower edge of...

My target Inr is 4 Was 4.7 but crashed down to 2.7 in 11 days why does this hap...

Tim_Thorpe

•8 years ago

8 Replies

Totally Disgusted

I cannot take much more. 1st of all, I am sick of Dr's, Specialists, Hospitalizations, tests, blood work, medications, in home nursing and physical therapists....

I cannot take much more. 1st of all, I am sick of Dr's, Specialists, Hospitaliza...

dar58

•8 years ago

10 Replies

A new diagnosis

Hi Not been on here for a while so here's an up date. On Saturday 30th January 2016 I was diagnosed Fibromyalgia so that explains most of the pain I'm in,...

Hi Not been on here for a while so here's an up date. On Saturday 30th Januar...

JoJo0405

•8 years ago

11 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2016

Need prognosis

Depression

Should I push for a diagnosis of APS?

Colonoscopy

Throbbing pains

Thank you for this community

Totally sick and confused

CRPS/RSD--Headaches, Ocular migraines, back of head feels squeezed!

Black circles under eyes

Elated! A strange response!

Surgery today

Upcoming surgery

INR Difficulties

Worried about pregnancy and positive Lupus Anticoagulant

Success At The Eye Doc & Maybe Plaquinil???

Feeling confused and/or a fraud

My doctor dismissed Hughes Syndrome!

High altitude and APS

Subconjunctival hemorrhage

Overwhelmed & Disgusted

Pea sized lump under skin from heparin injection?

Bad time of it.

Awaiting blood tests impatiently

Itching

Amorous fugax

INR targets

I've now been told ok to stop Fragmin at 12 weeks pregnant due to second test being negative.... Nervous

Inr crashed why ?

Totally Disgusted

A new diagnosis

Search posts

Pinned Posts

Latest poll

Out of Hours GP provision - how has your's served you in an emergency?

Topics

Archive