I just came on quickly to tell everyone thank you for all your replies to my last post, and for always being here for everyone. I am struggling badly with depression at the loss of losing more independence. This is the part of this ilness I cannot seem to get by. I have been doing mostly just sleeping and shutting myself from the world. Here, we can depend on our APS family for words of encouragement, whereas in our home lives there isn't much of that. I posted on my Facebook page how much I am hurting and devastated with all that has been lost due to constantly going through some flare or another.(Hoping for some support from friends and family members) My 2 children and their spouses all said they are right by me all the time. I have many friends on facebook, many are cousins or friends I grew up with, or friends throughout the years. I know many have seen it, as they have spoken to one another but none of them say anything to me. They post pics of themselves and their families enjoying life, being active etc, I and my children at one time was able to join in with them, but since 2000 when my life started to fall apart there weren't anymore invites. I know it sounds like I am jealous and maybe I am. But i'm human and have deep feelings. Please keep me in your thoughts and prayers. I will come on when I feel like I can handle the depression better. Thank you again, Darlene
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