Bad time of it.: I have had enough of... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Bad time of it.

teadonna profile image
4 Replies

I have had enough of it all, things keep going from bad to worse, fractured my metatarsal in my foot, then fractured my little finger. Need knee replacement my local hospital won't do it, cos of the lupus and having two strokes. Want to keep working don't want to be at home claiming benefit . Going for second opinion. Just been told have a Bosnik cyst type 2f /3. So more scan needed, at the moment very tired lots of pain and just getting harder to keep going. Have ask for blood test to check my thyroid in case it's changed. .

Has anyone had knee replacement with APS/LUPUS . Did you have anesthetic or spinal injection to numb lower body. Anyone got and advice so when I see second doctor I can give suggestions, thanks. Sorry for rant.

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teadonna
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Lure2 profile image
Lure2

I only ask you where you live and what anticoagulation therapy you are on? We can help you better that way.

Do you have both Lupus and APS and Thyroidea also?

Hope someone can answer you who knows about these things.

Best wishes and good luck and hope you will soon feel a little better again!

Kerstin in Stockholm

teadonna profile image
teadonna in reply to Lure2

I live in Essex in Uk. I am on warfarin my range is 3 - 4. Diagnosed with lupus and APS . I suffered with thyroid which I was diagnosed with 3 years ago started on 75 now on 125mg going to have another blood test tomorrow and wait and see if it is that which is causing me to be tired all the time. Balance and vertigo has started up again as well and Breathless a lot more.

struggling getting to work the travelling and moving cos if pain and everything, once there not too bad. I don't want to see my GP as don't want to waste his time but know I should see him, under different doctors for various condition not sure which one is best to talk too. X

Lure2 profile image
Lure2

You need an Expert but it is your life! Understand many things going on at present.

Kerstin

Hughes-Comrade profile image
Hughes-Comrade

As Mary always states, check your levels on Vit D3, B-12, and ferritin.

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