Hiya everyone. I received a confirmed diagnosis for APS in December and my first reaction? Elation!! Over the last 30 years I have been told I may have lupus, MS etc. About 4 years ago I started having heart problems and was diagnosed with mitral valve stenosis. After having the balloon to stretch my valve was told it should last 5-10 years. Ha it lasted 6 months and so in 2014 had open heart surgery to replace the mitral valve. I was I a coma for a moth afterwards which the consultants could not understand at all and my family were told to prepare themselves that I may never wake up! I was told I must have had Rheumatic fever as a child which I definitely did not!
I started to recuperate okay but as I am my husbands main Carer (he is severely disabled with MS), every time I transferred him or move him I started to have TIA's, have had 5 so far. I was given an appointment with a lovely consultant for the strokes and he did a whole mass of blood tests and told me he thought i had APS , but I couldn't be tested for it as I was already on warfarin for heart (for life). He got me an appointment to see a haematologist and she too was convinced I had APS and sent me to Guys hospital in London. There they could do tests on my blood by extracting the warfarin from the blood and various other tests which has definitely confirmed the diagnosis . OMG I'm not a hypochondriac! There is a reason for so many aches, pains and problems! They have even told me it is the likely that the APS is the reason for my heart problems and the reason I was In A coma for a month!!!!! And now I find a forum where everyone is the same woohoo as I said earlier, elation!!! Thank you thank you. I feel as if I can cope with each problem better (well, most of the time).