I haven't written for months,because I write something and it disappears. So this is the 5th attempt !!! I haven't written since I won my PIP Tribunal-
Basicly I had to have loads of tests done. So because the weather was bad in Jan 15 Professor Belch rang me. As all the test hadn't been done,all she could tell me was my kidneys were only functioning at 80%. She rang me in Feb because I was really poorly and couldn't make the appointment. Nothing to report because I was still waiting for lots of different tests. I didn't get all of them completed until the end of June. Then I was away in July.
So as I still hadn't heard anything,I went to my Gp she had a letter from Dundee Hospital, not from Professor Belch but Dr Baines saying that due to me not going to my appointments they weren't seeing me.Professor Belch had said to me,not to worry about going ( 4 hour drive,each way ) Until all the tests were done.
Apart from that my Neurologist had done other scans, In Dec I saw the rheumatologist who told me the bottom of my spine wasn't very good.I had arthritis in 1 hip. Also in the future I would need a hip replacement on the other ! Also I had tennis elbow and the start of Carpel Tunnel.
Apart from this, I was having major problems getting my INR to balance.
Then on Friday I had to see my Neurologist.I was supposed to see him in April but he changed my appointment date,and I wasn't able to make that date
So when I phoned to say I couldnt make that date I was offered last Friday or August !
So I went to see him, to be told after 2 years. He doesn't think I have APS. He has decided I have Primary Progressive M S'' !
So he wants me to make an appointment with my Go after he has written to her. Explaining he wants me to stop the Warfarin totally and just have an Aspirin. He is going to arrange an MS nurse to advise me,and blood tests in June once the Warfarin is out of my system. He also thinks maybe I hadn't had a stroke.
So I am Totally sick and Totally confused !