Hi there, I'm 52 and diagnosed with APS and recently and commenced on Warfarin ( 2.5-3.5 range expected), this is as a result of a stroke in May 2015. I am still experiencing giddiness, fatigue, migrane type headaches, numb fingers, feeling dim and clumsy and forgetful, I also have chest problems which I feel are related. My symptoms fluctuate and I have good days and bad.
The 2 years prior to my stroke I was getting chest problems every 2-3 months which resulted in severe breathlessness, A & E attendances, steroids and antibiotics and time off work. My symptoms never fully resolved and doctors attributed this all to chest infections/exacerbation of asthma.
My INR has been 1 and 2.5 on my 2 recent tests. I have not yet seen any specialist regarding diagnosis, in fact I found out about APS having been CC'd into correspondence from the haematologist to the stroke specialist, so I've not actually spoken to anybody yet.
My problem is ( if I don't have enough all ready ) my employer is really hassling me about returning to work, prognosis etc. I have been to 2 formal sickness meetings, in the last meeting I was told by them to 'tell my GP to expedite the appointments' as my 'job was at risk'.
They feel I am unlikely to have another stroke now I'm on treatment and cannot see why I can't come back. I am currently on half pay and work for the NHS as a senior nurse in A & E assessing mental health patients who attend in crisis.
I get the impression that my employers feel that I am overdoing the sickness role, my stroke doctor stated that all my symptoms were psychological and asked my GP to refer me for counselling, I can assure I am not anxious these are real symptoms. My GP admits he knows nothing about APS and he is reluctant to refer me on to anyone.
As I say I have not seen any specialist as yet, I am due to see a chest doctor next month and the haematologist even though I have already been started on warfarin and managed by the warfarin clinic run by a nurse. Occupational Health doctors have referred me for neuropsychiatric testing
I'm a bit stuck and not sure how to proceed......any suggestions in regards to answering my employers, they want answers now.
Thanking you all in advance