I have been really sick since Dec 2014. Lots and lots of tests and Dr visits all last year, my GP sent me and all my test results to a "diagnostic specialist" who told me I had APS and put me on Xarelto immediately. My symptoms/history:
35yrs chronic migraine with no family history of.
Pre-eclampsia during pregnancies
have tingling/numbness, blurry vision, increased migraines, constant sweating, stumbling, chronic fatigue. The joint pains are chronic and have severely limited my mobility.
My GP sent me to an Immunologist, the only APS specialist* he knew of, who had me take another blood test. He says this last blood test was negative so therefore I DO NOT have APS. I am very stressed and upset as I have no treatment other than anticoagulation. There is no APS specialist in Brisbane Australia and I cannot afford to travel over 1000km to see one at the moment.
*He is not a specialist per se, but treats APS patients.
At first he said I could be seron negative, but later in the consult said "seron negative" was just what doctors lumped all people with "unexplained symptoms" under. I just want to know what is wrong with me so that I can get some sort of treatment and get on with my life.