Well I finally after 2 months made eye doc appt for testing of Sojerns! I'm having trouble swallowing again and hate that choking! Started to go on celiac diet! I walk and pain in rt leg disapaiting! Since I have prosthetic leg I don't walk 3 miles anymore, but can walk a half a mile! Dr. ERKAN said I was very complicated and wants me to go to eye doc so I can get approval for Plaquinil! After 2 months of putting it off I am going tomorrow! He also said I need to have genetic testing for myself cuz I have many inheritable factors! I don't want to give up my DNA for anyone at this point! If it were to help someone else I'd do it in a NEW YORK MINUTE!! Lol... I was DX'd by Dr. ERKAN with RA/Rheumatoid Arthritis! I had JRA as a child and told him that's why he tested me! I wasn't surprised because I was getting the same RA pains in my hands and swelling as I did wen I was a 6 yr old kid! I guess you never forget that pain! Is it common to get these other autoimmune diseases with APS! What else will they come up with! I know Dr. ERKAN want to help me after I see 4 doctors he told me to see, but I'm overwhelmed and disgusted with situation! I just want to b kept anticoaulated in proper way? Is that asking too much! I need to remind my Hemotologist today that at 2.1 I was having embolis in my foot! I'm scared to tell him this, but have to only because I have this emotional attachment to him and he did diagnose me!!! Too late, but he finally did!!! My best to all! I must find out if I was tested for thyroid! I was loosing my hair intermittently! My hair so thick th my beautician never noticed it! Thank you for all your support and wish me luck today!!! I must be strong!!!
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