Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

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All posts for December 2015

Getting closer to figuring this out

My OB is having me wait until Jan/Feb to run the thrombophilia panel so that all pregnancy hormones will be out of my system, but in the meantime my sister had...

My OB is having me wait until Jan/Feb to run the thrombophilia panel so that all...

boags

•8 years ago

1 Reply

In pain and Confused!

I first must start by apologizing to Kerstin! Wen I sent that message I thought it goes all over! I'm a self taught DUMMY ON COMPUTERS! Lol... I've been having...

I first must start by apologizing to Kerstin! Wen I sent that message I thought ...

Debbweb01

•8 years ago

6 Replies

Hosp in Dublin where they have specialist in aps

Hi would help me greatly if there was specialist in hospital in dub ..tks

ftzer

•8 years ago

13 Replies

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60 mg of lovenox is that enough?

I finally found a hematologist who is treating me for aps, he doesn't seem to be an expert on this but wants to help, he started me on 60 mg of lovenox and 5...

I finally found a hematologist who is treating me for aps, he doesn't seem to be...

determinedandstrong

•8 years ago

29 Replies

Disability?

Was wondering if anyone has successfully applied for Social Security Disability? I've been trying for it for almost 2 years now.

Was wondering if anyone has successfully applied for Social Security Disability?...

Christopher_O

•8 years ago

19 Replies

Early Christmas present!

Came home to find a voicemail from the Lupus Centre at Guys Hospital - I have my first appointment booked for beginning of February hopefully I will get some...

Came home to find a voicemail from the Lupus Centre at Guys Hospital - I have my...

NicBay

•8 years ago

7 Replies

New symptoms arrising

Ive had Aps and lupus for over ten years now and its been reasonably managed with daily steroids, asprin and blood pressure meds. Last December i got very...

Ive had Aps and lupus for over ten years now and its been reasonably managed wit...

Tomcat

•8 years ago

18 Replies

Vitamin K

Hi My 37 yr old (very fit) son had a DVT in his leg last year and after blood tests he was told he had cardiolipin antibodies and Hughes Syndrome. He hasn't...

Hi My 37 yr old (very fit) son had a DVT in his leg last year and after blood te...

joanne33

•8 years ago

12 Replies

seron negative

Hi all saw a diagnostic specialist a couple of months ago who reviewed my symptoms and blood test and gave me the DX of APS. He would have liked a second...

Hi all saw a diagnostic specialist a couple of months ago who reviewed my sympt...

suntap

•8 years ago

3 Replies

Specialist appointment achieved!

So pleased to at last of received or date for seeing one of your suggested specialists. Now worried about asking the right questions as there are so many. Any...

So pleased to at last of received or date for seeing one of your suggested speci...

Vespa1

•8 years ago

4 Replies

Prof Khamashta

Hi does anyone know if there's been mention of when Prof Khamashta will be returning from his sabbatical? Thanks

Hi does anyone know if there's been mention of when Prof Khamashta will be retur...

jp83

•8 years ago

6 Replies

Possible SLE now but confused

Hi all, so, I've seen Dr Karim twice now. the first lot of blood tests were sent to me (see below), and I'm waiting on the second set. RDW = 15.1......

Hi all, so, I've seen Dr Karim twice now. the first lot of blood tests were se...

phoenix77

•8 years ago

14 Replies

So confused and so miserable

Went to Florida to be snowbirds for the winter months I have MS, Lupus,Hughes and a few more. My 2nd hospitalization in less than one month. Was rushed into...

Went to Florida to be snowbirds for the winter months I have MS, Lupus,Hughes an...

dar58

•8 years ago

30 Replies

good evening all

no longer seeing any doctors for my aps., dizziness. no one is willing to try anything to stop or slow it, so i see no reason to see them anymore. it is...

no longer seeing any doctors for my aps., dizziness. no one is willing to try an...

packerfan

•8 years ago

12 Replies

Results- not what I hoped for

My results came in and the tests included Beta IgG, IgM, and IgA, Phos/Serine, and Cardiolipin. Each result shows only < a number, with that number being...

My results came in and the tests included Beta IgG, IgM, and IgA, Phos/Serine, a...

boags

•8 years ago

1 Reply

Coughing Up Blood

I was wondering if any one has ever coughed up blood after excertion? I have had this problem and many tests with no answers. Reply if possable. Thanks

I was wondering if any one has ever coughed up blood after excertion? I have had...

Michelle_Tower

•8 years ago

11 Replies

APS brain fog

Hi just for tha last few weeks I lost a day one week and still don't know why and if some tell me some think I move away have to go back as forgotten want they...

Hi just for tha last few weeks I lost a day one week and still don't know why an...

Lesley61

•8 years ago

15 Replies

Hughes Syndrome - stomach pain/vomit

Hi, my girlfriend has Hughes Syndrome. We live in Norway and the doctors here dont have much knowledge about her illness. Her INR is very low (1,4) and the...

Hi, my girlfriend has Hughes Syndrome. We live in Norway and the doctors here do...

Noshan

•8 years ago

8 Replies

INR

Having had a severe nose bleed on Saturday the doctors at the hospital stopped my warfarin for two days it was 5.7 no idea what caused it to be so high, any...

Having had a severe nose bleed on Saturday the doctors at the hospital stopped m...

daisyd

•8 years ago

2 Replies

Glad to Belong Here!

I am from Boston ,MA. I have had APS for nearly 20 years. In 1998 I was diagnosed with 7 strokes caused by APS. This is the first time I have got involved in a...

I am from Boston ,MA. I have had APS for nearly 20 years. In 1998 I was diagnose...

Michelle_Tower

•8 years ago

34 Replies

APS and shogrens

Hi all, I've not posted for a while and don't want to tempt fate but on the whole am quite well at the moment. I have recently been tested for shogrens as I'm...

Hi all, I've not posted for a while and don't want to tempt fate but on the whol...

Christine7

•8 years ago

13 Replies

PIP

Can anyone tell me how long you have to wait for your assessment after applying for PIP. I received my letter this week to apply and was told by staff at the...

Can anyone tell me how long you have to wait for your assessment after applying ...

Hamy

•8 years ago

10 Replies

hello everyone, this is scary stuff

i was told i have sticky blood syndrome last year after 2 tias and a 1 big stroke, which left me prayized on my left side, ive another 2 tias since, my wants...

i was told i have sticky blood syndrome last year after 2 tias and a 1 big strok...

dwarfer1974

•8 years ago

12 Replies

Any advice would be much appreciated!

Hi all, this is my first post ever to any type of forum. I was diagnosed with APS in July 2015, sort of by accident. My primary physician was VERY thorough...

Hi all, this is my first post ever to any type of forum. I was diagnosed with A...

JessNY

•8 years ago

25 Replies

Brain Fog please help me!

Hi Everyone! Mary Lure 2 Kerstin all of you have helped me so much! I can't tell you how much! My dear sister Lynn/ Nanny 23 had been trying to understand my...

Hi Everyone! Mary Lure 2 Kerstin all of you have helped me so much! I can't tell...

Debbweb01

•8 years ago

4 Replies

INR Dropping

Hi, My INR is all over the place at the moment and it takes forever for it to climb back up. Conversely if I stop taking warfarin for whatever reason it drops...

Hi, My INR is all over the place at the moment and it takes forever for it to cl...

LesJames

•8 years ago

8 Replies

Fearing exercise

I know this is my own fear, but I don't exercise for fear of causing a clot to move and cause damage if ingot my heart rate up too much. My form of APS is only...

I know this is my own fear, but I don't exercise for fear of causing a clot to m...

mylafont

•8 years ago

9 Replies

Ear ache

Trying very hard not to be a total hypochondriac! However I have had occasional ear ache and feel like I am on an aeroplane occasionally and I go deaf then...

Trying very hard not to be a total hypochondriac! However I have had occasional...

linagirl

•8 years ago

7 Replies

Looking for answers

I am just beginning the journey of searching for answers and am hoping for some advice. I am 27 years old and I have three healthy children. I have lost three...

I am just beginning the journey of searching for answers and am hoping for some ...

boags

•8 years ago

4 Replies

Morning All- just wondered what to expect next

Hello. As you know from previous threads I am seeing Dr Situnayake next Wednesday and I just wondered in everyone's experience what is likely to happen next?...

Hello. As you know from previous threads I am seeing Dr Situnayake next Wednesd...

linagirl

•8 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2015

Getting closer to figuring this out

In pain and Confused!

Hosp in Dublin where they have specialist in aps

60 mg of lovenox is that enough?

Disability?

Early Christmas present!

New symptoms arrising

Vitamin K

seron negative

Specialist appointment achieved!

Prof Khamashta

Possible SLE now but confused

So confused and so miserable

good evening all

Results- not what I hoped for

Coughing Up Blood

APS brain fog

Hughes Syndrome - stomach pain/vomit

INR

Glad to Belong Here!

APS and shogrens

PIP

hello everyone, this is scary stuff

Any advice would be much appreciated!

Brain Fog please help me!

INR Dropping

Fearing exercise

Ear ache

Looking for answers

Morning All- just wondered what to expect next

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