Hosp in Dublin where they have specialist in aps

[ftzer]

Hi would help me greatly if there was specialist in hospital in dub ..tks

[MaryF Administrator]

Hi, we currently have nobody on our recommended list from the area, and if you go there for any treatment, perhaps consider giving them the details for the charity. I am sorry I can't recommend anybody at this stage in time, hopefully this will change over time. MaryF

[ftzer in reply to MaryF]

Hi Mary ..After writing letter to neuro ..He called me back said getting ive to ger tested for Ms ....told him on website that's only info I have ....He said do have all signs but aps very complicated ...keep u updated......least this site gives me more confidence ....x

[MaryF Administrator in reply to ftzer]

Please do let him know that MS and Hughes Syndrome/APS have similar symptoms and at times a wrong diagnosis is made, please see this newspaper article and the relevant page off our charity website:

dailymail.co.uk/health/arti...

hughes-syndrome.org/about-h...

Make sure your neurologist has a very thorough look around our website, for his useful medical information, and also does these blood tests, but do them at them at the hospital, let him know the blood samples taken are time sensitive if left lying around for collection in GP surgery with courier!

hughes-syndrome.org/about-h...

MaryF

[Lure2 in reply to MaryF]

Hi Mary,

The article from the Dailymail is from today! Interesting about MS and APS and also a new book written by Triona Holden.

Thank you from Kersti

[MaryF Administrator in reply to Lure2]

All the best to you Kerstin, a big kiss leaving from the UK destined for Sweden over the Christmas holidays! MaryF

[Lure2 in reply to MaryF]

Well thank you Mary and the same to you and your family from Sweden and me!

Kerstin

[Tlove]

Hi, I'm in Cork and was referred to pregnancy loss clinic after recurrent miscarriage. They were the ones who diagnosed me and then I asked for a referral to see a haematologist recently. Maybe your best bet is to get your GP to refer you to a haematologist? You will be waiting a long time if you go public though, it was months before I was seen but I will be closely monitored during my pregnancy (they said they'd take bloods fortnightly) and they set a general follow up appointment in March next year. They also requested further blood testing for a few tests that were missed. Not sure if this really helps you but it should give you an idea of how the Irish system works.

[ftzer in reply to Tlove]

Tks I c a haematologist in large hospital ..was in few weeks ago for 11 nites ..One clinic letting me home asked bout in level said wait for haemo ..doc came down gave out to me saying on warr 10 years should know what to to do ...said never on a asprin and warr before and didn't know level either ...okay doc told me range ...my gp rang me next day told me different inr...hospital had rang them ....I am only aps patient in gp..she is doing best ..

[Tlove in reply to ftzer]

It's a tricky one as it seems to affect people differently. For me, I only need anticoagulants when I'm pregnant but not otherwise. The clinic gave me an information sheet on aps that was taken from patient.co.uk and a little sheet with info for how I should be treated for future pregnancies. Even then, there seems to be conflicting opinion on how long to take the anticoagulants - first 12 weeks or for the full 9 months. Some GPs haven't even heard of aps! At one point I considered travelling to London - the hospital at London Bridge takes private patients but it would not be covered by Irish medical insurance. Could be worth looking into though, you could get all your bloods tested here prior to going there and then see one of their consultants with your results.

[silemoran]

Sile here in Dublin if you get this reply let me know seem to have a problem with previous reply . Thanking you .

[ftzer in reply to silemoran]

Hi sile ....only got this message from u

[silemoran in reply to ftzer]

I attend a doctor in St James hospital and his name is Dr Barry White haemotogist, if that is any help

[ftzer]

Ah thanks ...beginning think only person. .ha! ...is the doctor aps specialists? ..All these other symptoms came on so quick , can't walk far ...but was jogging in august ...I've decided to get my gp to test me for aps ..as beginning to doubt if is aps ..as nobody wants to c me for some reason ...X will let u know the again