I first must start by apologizing to Kerstin! Wen I sent that message I thought it goes all over! I'm a self taught DUMMY ON COMPUTERS! Lol... I've been having pain in my rt calf for some time now and went to my Hemotologists partner cuz he was not in! I told him of my leg and he never checked it to even c if I had a pulse there! He just ordered an INR! My INR last time was 1.4 & his results was 1.7! No good! That's Wat a normal range is! Why they can't stableize me I don't know! I'm not a doctor, but I'm assuming it's cuz I also have another sludgy blood disorder called Polycythemia Vera/PV! Thanks to this Site /Blog I have an appointment with a Dr. Caroline Cromwell in New York City, only an hours train ride for me! Luckily my dear sister Lynn offered to take day off from work to accompany me! I'm not afraid to go alone, I work there and go often on my own, it's just CHRISTMASTIME & the crowds will kill me cuz I have a PROSTHETIC LEFT LEG! I must make my appointment his Wednesday by hook or by crook! I CANT WAIT TIL JANUARY before I c this specialist! January my deductable goes into place for $2000.00. I can't afford it! I have an appointment at 3pm today with my vascular doc who is only one I can trust! I shall let you know! After reading Kay Thackray's book I know I had CATOSTROFIC APS a very rare occurrence, but I must own it and fight the docs in USA! Wat WUD help is this APS HANDBOOK THAT BOIK SAID IT CAN BE GOTTEN FROM THE HUGHS SYNDROME FOUNDATION! It's called The Hughes Syndrome Booklet, By Dr. Graham Hughes! It's free wen you join Hughes Syndrome Foundation! I don't care what it costs how can I get this life saving booklet to show my doctors here whom are ignorant to APS? PLEASE HELP ME IM HANING IN BY A THREAD AT THIS POINT! I'm doing best I can and its not enough! I'm at my breaking point and just don't want to be on this earth feeling hopeless and inconsolable! Thanks in advance for any advice you may give me!!! GODSPEED!!!
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