so, I've seen Dr Karim twice now. the first lot of blood tests were sent to me (see below), and I'm waiting on the second set.
RDW = 15.1 (11.0-15.0)
White count = 14.8 (4-11)
Neutrophils = 10.4 (2.0-7.5)
APTT = 65.8 (23-35)
APTT ration 2.18 (0.76-1.17)
CRP 33 (<10)
Erythrocyte Sedimentation Rate (ESR) = 93 (1-10)
Beta 2 Glycoprotein 1 Abs was negative.
So at the appointment last week I asked if I had lupus ad he mentions it was indicated on the letter to my GP. He was a little cagey but said that the results above plus the positive anti dna antibodies indicated some lupus was present.
I'm still not sure if that is a lupus diagnosis or not. Work want to send my back to occupational health to see if I'm capable of doing my job, but without a firm (preferably written) diagnosis I don't know what to tell them.
I also have to start hydroxychloroquine ASAP which frightens me and the strength of one of the APS positives has made Dr Karmin say he is going to consult a colleague to debate putting me on warfarin or leaving it as aspirin and hydroxychloroquine (if I can bring myself to take it - I'm really scared).
I'm frightened and confused and feel very vulnerable right now.