Hi Everyone! Mary Lure 2 Kerstin all of you have helped me so much! I can't tell you how much! My dear sister Lynn/ Nanny 23 had been trying to understand my illness so has joined! I've begged her to get tested! Because of you wonderful people on here she has symptoms! I without being tested know I have the JAK Gene that causescAPS! The reason is for this site! There was one other woman on hear that has PV/Polycythemia Vera along with APS! I went to PV sit which I havnt in 10 years since 2 years b4 I went to Hemotologist and asked him if I had PV! He wanted to know how I knew is such a rare blood disease ! Research cuz no one tuk my serious! A lifetime of Pyschosematic illnesses! Oh By The way I want that Person who also has PV to know thatvThe JAK 2 Gene causes both! Kerstin/Lure 2 said a wor like she is a phenomenon! I don't know how to get bak to that site to speak to Kerstin or the person with PV and APS! Also the person who recommended A Dr Caroline C or Crowly I have sever brain fog! I'm very confused lately! To the point where I think I have just taken my meds cuz bottle ther but don't remember if I actually tuk it! I don't do that wit Coumadin or Plavix! My sis and I did something the other day and I had no memory of it whatsoever! My cymbalta I've taken sinc my Beloved son passed in Dec. 6,2006 which helped! This has been going in for a couple of years my sis too! Maybe it's cuz 9th anniversary of my only child(had trouble with pregnancy, hi risk and hi BP! , premature by 3-4 weeks!)! I'm unwell and in bed every other day and in a rush to get things done b4 Dec 6 for Xmas! I'll be decorating this weekend and also most done with Xmas shopping! I very hard on myself! I also must tell Y'All about my experience with 2 docs my Hemyand my Primary! Went to primary and told him APS WAS RARE! O no he says and I wanted to tell him Wat Mary has told me about Vit D and B 12! Wen I said Vit. D he said Wat are u kidding me Vit. D has nothing tondo with APS, you must mean Vit K! Instead of T gelling the Gods they're wrong I
shut up! But write him a letter cuz I can't afford THE $30 cause of THE DESPISED OBAMA Problems! I of course was ne in that insurance DEBSCLE 2yrs ago and wound up getting private care 4 $700 a month! He also lost me my leg! I never cried over my loss of leg just accepted my fate! Now I can't stand the site of it! I cry! Cud I be having PTSD or is I cuz I lost my son and loosing a leg was a piece of cake! I've become bulletproof since his Passing! I just forget everything &!0people get angry at me for that! What shud I tell them w/o insulting them??Wat can b done about the BRAINFOG! I try to write things down, but my sis got That Carilyne C's phone number I wrote Caroline in my phone and lost paper! Omg she was from NY! Also Kerstin replied to the PV & APS PERSON! I don't get many replies Mary am I doing it all wrong! Thx pls explain!!!GODSPEED!!!
This Photo was one mint b4 I lost my leg! I was 61 at the time! I now look 73! Lol... Lost 30 pounds! Absolutely NI APPETITE! Hate meat and chucke all of a sudden! Eat fresh veggies and carbs and still loosin!!Dont tell my Non Educated in APS DICS! I also aske my Hemotologist if my itch was caused by APS No he sai and it WUD be weird if it was! I live him but will give him book and enlighten him about it!!! Lol. Plus a letter cuz I don't want to embarrass him about it in person! Lol... Yes I'm way too kind! GODSPEED TO ALL MY NEWDOUND ß DVR bdbfb f b