saw a diagnostic specialist a couple of months ago who reviewed my symptoms and blood test and gave me the DX of APS. He would have liked a second blood test to confirm, but decided it was more important to get me straight back onto Xarelto.
I have seen an Immunologist who specialises in APS. got results of my blood test today and it was negative for lupus anticoagulant and cardiolipid. He told me I mustn't have APS so I raised the issue of migraines, 2 miscarriages, 3 TIA's and pulmonary emboli. He then said I could be seron negative and the treatment would be the same - anticoagulants. He was intending to change me over to Warfarin and plaquenil, but will ring me on Thursday with his decision. The Xarelto may suffice and he doesn't want to put me on plaquenel if I don't have APS.
My migraines have been increasing in frequency and intensity all year and I still have pins and needles, double vision, nerve neuropathy and joint pains. the pains are so bad that they are limiting my mobility. I just wanted a firm diagnosis so I could get my medication sorted and get on with my life.
I leave on a 10day cruise on the 17th Dec with my hubby and my mother and am starting to fear I will have a dreadful time because of how I feel physically. sorry about my vent, I am starting to get really p%ssed off at having been so sick all year.