I am newly diagnosed and am in sunny Queensland Australia. I had several pulmonary embolisms end of December last year and they only got diagnosed at the beginning of Feb, by that time I had suffered blackouts, seizures, pneumonia, fluid on the lungs and a TiA. I was put on rivaroxaban for 6 months but did not get a whole lot better and also developed a lot of other symptoms. My GP kept investigating thinking I had MS but got the diagnosis of APS. So I have been put back on Xarelto indefinitely. I see a specialist on the 24th Nov.
I read this forum every night and find it very informative. I see other people have relief from symptoms when they are well anticoagulated. I have been waiting for improvement but it isn't happening.
Symptoms with the PE's that still continue:
migraine (have had for 35 years) - they increased in pain and frequency and continue to do so
blurred and double vision - daily problems
fatigue - always!
heat and sweating
New symptoms after PE's had cleared a bit:
Irritable bowel syndrome?
faint and dizzy
I cannot stand or walk for more than 10 mins; then the pain intensifies and I break out in a sweat. I am very overweight; have been for a while, but I could still move about freely; but now I have had no improvement but gradually losing mobility by the day. I was really down today and for the first time since diagnosis, shed a few tears as I feel my mobility is severely limited and that I will soon be house bound or confined to chair or bed. Migraine last week lasted 11 days and my GP gave me endone. It had no effect on me, so I didn't bother continuing with it.
I suppose I just am having a vent or hoping for words of encouragement
thanks in advance