I just wanted to share what I can only describe as an amazingly positive experience.
I had my TIA in February, APS was first diagnosed in April and I was referred to an APS Specialist in September as the haematology team in my local hospital didn't feel they had the specialist knowledge to treat me longterm.
I'm triple positive, but pretty much asymptomatic (with the exception of the TIA) and medicated with life long warfarin.
He listened to my concern over hair loss on warfarin and immediately suggested I switch to Sinthrome, a different form of warfarin, which should stop the problem. I could have kissed him as every other Dr has just dismissed this as nothing they could do.
He'll support me in self testing (after my own GP practice / NHS Trust has flatly refused) and will ensure that I get the machine and strips I need when they've got me stable on Sinthrome.
He reassured me and gave me an over view of the care he would want me to receive if I decide to have another baby, why certain precautions would be necessary and explaining that apart from the necessary medication and check ups he's confident I can have another normal pregnancy and delivery.
And finally, he told me that if anything changes to contact his secretary and he'll see me as a matter of urgency and not to wait for my next appointment with him.
I honestly couldn't be happier with the care received from him!
For all those who have yet to see an APS Specialist, please push for a referral. The difference between a haematologist who does / doesn't specialise in APS is amazing!