Went into St Thomas' hospital in July because I was very breathless. They discovered several large clots in my lungs. After several months of tests I have now been diagnosed with APS and am taking Rivaroxaban indefinitely. Earlier in the year I was diagnosed with Fibromyalgia.
This has changed my life and although I am retired I was a very active person. Now I never know how I am going to feel from one hour to the next - fatigue being the worst, I suppose. I sleep, sometimes, 14 hours. Other symptoms are daily headaches, foggy brain, giddiness, pain anywhere and everywhere and generally feeling ill. When I feel well I maximize the time by 'doing' things but have to pay for it later.
I am under excellent specialists in Guys and St Thomas' but feel very alone in all this. Would love to hear from anyone with similar condition.