Hi Kerstin! So sorry I didn't know I was in Clair's site so sorry! Now I know! I have been recently diagnosed with APS and also have another blood problem, very rare PV (polycythemia Vera! I've had it for over ten years! I DX'd myself and waited 2 yesrs b4 telling my HEMOTOLOGIST/Oncologist that I had it! My other parts of my blood not affected by APS, are involved in PV! Plasma,Hemoglobin, RBC & ME WBC! They say my blood so thick it's like sludge! I am thinking of finding a Rhemotologist because as a child I HAD JRA( JUVENILE RHEUMATOID ARTHRITIS) Do u think there is any correlation between the 2? I do suffer every night wit terrible bidyaches! Legs arms and ribs! I don't sleep due to pain! Do any of you who havAPS Suffer with that! I'm also ver fatigued and need to rest every other day! I'm a robust 62 year old and very independent and no matter what I've been thru I always snap bak! In July I had a lifesaving stomach surgery that went undetected by DICTOR! I knew because this was tummy surgery # 6 or 7! I have never been same since! I also lost my left leg in this past January and recovered in record time! Got my prosthetic leg on Feb 17& on Feb. 18 walked up 20 steps! Very determined to be me again! I walked 10 blocks a day and began to run just wen Stomach Surgerypopped up! Since I havnt been same since is it possible that the Surgery triggered my APS? God Bless Y'All on this site! Thank You for your feedback! I think you may have saved my life!!! I've been treated extremely badly by MEDICAL OROFESSION, and friends and family just don't get it cuz they don't want to get it! Since I'm so proud and independent I won't ever ASK FOR HELP! It they can't see or choose to put blinders on, I certainly won't ask! They know better! I'm just totally OVERWHELMED with all of this! The ANGERtiwards the Medical Community has consumed me! I must let it go! Good Luck to all and I pray for all of you!!! Thank You in advance! Happy Holidays! Here in USA is Thanjsgiving next week! I sure am thankful for ALL IF YOU!!! GODSPEED!!!
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