Hi, just been to see my Rhumatologist this morning and I was pretty nervous. I been ill for 2 1/2 years and never really got to the bottom of why. I've always felt like I've been banging my head against brick wall every time I see my Neurologist and Rhumatologist. Today I went with yep I'll sit and listen, yep I'll probably not get answer. But was quite surprised (which sounds daft) but I've been waiting for someone to just listen.
Anyway ive been on Warfarin since Feb this year just as a trial to see if makes my symptoms any better. APS was mentioned at the beginning of me been poorly but all of my tests are always borderline or ok. Today my Rhumatologist wants me to stay on my Warfarin and he is upping my INR target to 3, my current target in 2.5. He did explain that it's quite dangerous and went into detail and it petrifies me. He said that if my symptoms go I'm seronegative APS. If my symptoms stay the same then we will start from the beginning again and try to find out what else it could be.
It would be good if I could hear back from anyone who has an INR target of 3 and if they have any side effects. My husband is extremely worried about the high dose of Warfarin and has basically said he will wrap me up in cotton wool.