Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for September 2015

Working

I am unable to work with my symptoms of Hughes and 2 strokes and I am being assessed for PIP next week, very quick I only applied on advice from my GP last...

I am unable to work with my symptoms of Hughes and 2 strokes and I am being asse...

Danni33

•9 years ago

15 Replies

Hemaplegic attacks & lights

Hello I m new on here, I have Sjorgrens and one min I am told I have Hughes and possible Lupus and the next I am not....I have a strange condition whereby when...

Hello I m new on here, I have Sjorgrens and one min I am told I have Hughes and ...

Lucyanders

•9 years ago

15 Replies

Apixaben What are the pros or cons

Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's also. Each time ive had a clot in my lungs they say i must have had a dvt well...

Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's al...

Rose4u

•9 years ago

10 Replies

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Why do I have Lupus APS?

Did anyone develop APS after having a joint replacement? I got my hip replaced several years ago and it ended up being recalled. I think that me getting APS...

Did anyone develop APS after having a joint replacement? I got my hip replaced ...

adsmadison

•9 years ago

2 Replies

Advice needed please re surgery

I fell and broke my shoulder a year ago and in April was referred for surgery. Finally been seen this week. In the meantime I had the tIA etc, triple +be with...

I fell and broke my shoulder a year ago and in April was referred for surgery. F...

Fusch

•9 years ago

3 Replies

Blood work

I just got my liver test results. My ALT is a 6 and the AST is a 10. They did not go over these with me. Are they whithin normal range? Should I be worried?...

I just got my liver test results. My ALT is a 6 and the AST is a 10. They did no...

Llitteken

•9 years ago

5 Replies

Help with self testing

Hi I wondered if anyone can help me please. I have tested tonight and it is showing >-8.0 ????? What does this mean? I have not kept the testing strip box and...

Hi I wondered if anyone can help me please. I have tested tonight and it is show...

gemgemz

•9 years ago

6 Replies

Osteoneocrosis link to APS

Hi everyone I just had a bit more clarification on a problem I have had since childhood. With my recent diagnosis of Aps, i started to question some of my...

Hi everyone I just had a bit more clarification on a problem I have had since ...

Hidden

•9 years ago

6 Replies

Brain Aneurysm

As if the Factor V Leiden and Anti phospholipid wasn't enough--- Due to a family history of brain aneurysms, -my mother died of one, my sister had 3 but were...

As if the Factor V Leiden and Anti phospholipid wasn't enough--- Due to a family...

mozelle

•9 years ago

12 Replies

Cancelled operation due to risk.......???!!

Sat here in hospital waiting for inr result as yesterday's one of 1.7 is to risky to operate........ Everyone else in the ward has been done and is drinking...

Sat here in hospital waiting for inr result as yesterday's one of 1.7 is to risk...

loppylou68

•9 years ago

5 Replies

Discharged from Lupus unit !

Hi there I was diagnosed with APS three years ago by Professor Khamashta. I was put on daily Fragmin injections which really helped with my symptoms ! I went...

Hi there I was diagnosed with APS three years ago by Professor Khamashta. I was...

jessie68

•9 years ago

20 Replies

APS/Hughes Syndrome?

A few years after suffering my 1st DVT in 1999 I was diagnosed with Factor V Leiden. I suffered my 2nd DVT in 2011. Some other info about me medically: I have...

A few years after suffering my 1st DVT in 1999 I was diagnosed with Factor V Lei...

PamZ

•9 years ago

5 Replies

Tooth Extractions

I I have to have a tooth out probably, as the filling would be way below the gum, and any bleeding would apparently be difficult to stop. With an extraction...

I I have to have a tooth out probably, as the filling would be way below the gum...

Zamalek

•9 years ago

15 Replies

Concerned for my Father-in-law

Hi all, I am looking for some insight into possibilities for my sick father-in-law. He was previously diagnosed with late-stage MS, and was just admitted into...

Hi all, I am looking for some insight into possibilities for my sick father-in-l...

l0stjuly

•9 years ago

3 Replies

Here is another study

http://www.ncbi.nlm.nih.gov/pubmed/9350611

Brvt

•9 years ago

3 Replies

Sorry here isthe link

http://www.ncbi.nlm.nih.gov/pubmed/14587888

Brvt

•9 years ago

2 Replies

Look what I found.potential cure for aps??

I came across this study ....wonder why there isn't much research on this herb..while they keep hunting cures for aps..I don't know of there are any...

I came across this study ....wonder why there isn't much research on this herb.....

Brvt

•9 years ago

10 Replies

Follow up at guys today

All went ok I have hydroxyquinine for fatigue and sore joints Prescription for heparin and she will write a letter for my new gp (I switched) about what to do...

All went ok I have hydroxyquinine for fatigue and sore joints Prescription for h...

Fusch

•9 years ago

4 Replies

Could I have Hughes syndrome??

Hi all, I have come across an article in a magazine and the woman described an illness that she had suffered from for a long time. Hughes syndrome. I have had...

Hi all, I have come across an article in a magazine and the woman described an i...

Svd80

•9 years ago

7 Replies

NZ Rheumatologist

Hi I'm looking for someone to recommend a Rheumatologist in NZ for me. I live in the Wairarapa but can easily travel to Wellington districts. I found the...

Hi I'm looking for someone to recommend a Rheumatologist in NZ for me. I live i...

Nellennium

•9 years ago

6 Replies

only 12 weeks and don't know how I am going to last with this constant worry

Hi All, I just joined the community and have read many of the posts on successful pregnancies and APS. Currently I am between 11-12 weeks and decided I just...

Hi All, I just joined the community and have read many of the posts on successfu...

MStiff

•9 years ago

8 Replies

Hi all

I found this article about the HPV vaccination and thought I would share it....

Lyndsaylou

•9 years ago

2 Replies

A light in the tunnel

Hello everyone, I have had my local doctors visit today, that went for an hour...great doctor and ready to listen. I don't think he fully understands Hughes...

Hello everyone, I have had my local doctors visit today, that went for an hour....

Hidden

•9 years ago

8 Replies

Sharp pain on the top left part of my head

I have had this sharp pain on the top left side of my head happen four days in a row now, and in the spot that it hurts it is super tender to the touch and...

I have had this sharp pain on the top left side of my head happen four days in a...

BriLeigh18

•9 years ago

8 Replies

Can Yoga reduce bleeding for women with APS?

Before being diagnosed with APS and taking blood thinners (Warfarin for me)..I had very less bleeding which was expected since i had Poly cystic ovary (PCOS)....

Before being diagnosed with APS and taking blood thinners (Warfarin for me)..I h...

Aps4Life

•9 years ago

8 Replies

Still learning

Hello All I had a superior mesenteric vein thrombosis almost a year ago. The hematologist that I have been seeing tested me for lupus anticoagulant and I am...

Hello All I had a superior mesenteric vein thrombosis almost a year ago. The h...

3Snyders

•9 years ago

6 Replies

One new small angle on raising awareness for Hughes Syndrome

From this point onwards, every time I am in hospital either for myself or the children, I am taking the trouble to write a review on NHS Choices. Mostly I am...

From this point onwards, every time I am in hospital either for myself or the ch...

MaryF

Administrator•9 years ago

18 Replies

Warfarin

I have been on Warfarin for the last 10 years and was told I will be on it for life. My INR, however, seems to be a continual moving target. I have now been...

I have been on Warfarin for the last 10 years and was told I will be on it for l...

Kentish_Man

•9 years ago

11 Replies

Hives? Cellulitis?

I had a very bad case of cellulitis in both calves two weeks ago. After finally getting the right combo of antibiotics from my primary care doc (the ER...

I had a very bad case of cellulitis in both calves two weeks ago. After finally ...

Holley

•9 years ago

8 Replies

Chest pain and leg cramps

Hi My medical history- SLE, APS, Sjogrens, Angina, Vasculitis in legs x4 times, Fibromyalgia, Latent TB...... Like a lot of us I feel "on my own" and would...

Hi My medical history- SLE, APS, Sjogrens, Angina, Vasculitis in legs x4 times,...

Kimu

•9 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2015

Working

Hemaplegic attacks & lights

Apixaben What are the pros or cons

Why do I have Lupus APS?

Advice needed please re surgery

Blood work

Help with self testing

Osteoneocrosis link to APS

Brain Aneurysm

Cancelled operation due to risk.......???!!

Discharged from Lupus unit !

APS/Hughes Syndrome?

Tooth Extractions

Concerned for my Father-in-law

Here is another study

Sorry here isthe link

Look what I found.potential cure for aps??

Follow up at guys today

Could I have Hughes syndrome??

NZ Rheumatologist

only 12 weeks and don't know how I am going to last with this constant worry

Hi all

A light in the tunnel

Sharp pain on the top left part of my head

Can Yoga reduce bleeding for women with APS?

Still learning

One new small angle on raising awareness for Hughes Syndrome

Warfarin

Hives? Cellulitis?

Chest pain and leg cramps

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